ArticleBMJ (Clinical research ed.)1999
Current status of long term ventilation of children in the United Kingdom: questionnaire survey.
Article in BMJ (Clinical research ed.), 1999. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 1 of them a synthesis that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
23 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Outcomes of children and young people with cerebral palsy receiving long-term respiratory support: A systematic review.Developmental medicine and child neurology · 2026Pooled it
- Patient Safety Events Among Children Receiving Home Health Care.JAMA network open · 2026Article
- Safe Enough: Subjective Determinations in Hospital Discharge for Patients With Medical Complexity.Pediatrics · 2025Article
- Review
- Characteristics and Risk Factors of Children Requiring Prolonged Mechanical Ventilation vs. Non-prolonged Mechanical Ventilation in the PICU: A Prospective Single-Center Study.Frontiers in pediatrics · 2022Article
- Ventilatory support at home for children: A joint position paper from the Thoracic Society of Australia and New Zealand/Australasian Sleep Association.Respirology (Carlton, Vic.) · 2021Review
- Technology-dependent children.International journal of pediatrics & adolescent medicine · 2020Review
- Transition to Adult Care in Children on Long-Term Ventilation.Frontiers in pediatrics · 2020Review
- Pediatric Home Mechanical Ventilation in Korea: the Present Situation and Future Strategy.Journal of Korean medical science · 2019Article
- Long-term Non-Invasive Ventilation in Infants: A Systematic Review and Meta-Analysis.Frontiers in pediatrics · 2018Article
- Quality of life in home-ventilated children and their families.European journal of pediatrics · 2017Article
- Factors Associated with Changes in Invasive and Noninvasive Positive Airway Pressure Therapy Settings during Pediatric Polysomnograms.Journal of clinical sleep medicine : JCSM : official publication of the American Academy of Sleep Medicine · 2017Article
- Parental Perceptions of Quality of Life in Children on Long-Term Ventilation at Home as Compared to Enterostomy Tubes.PloS one · 2016Article
- Sleep patterns, sleep instability, and health related quality of life in parents of ventilator-assisted children.Journal of clinical sleep medicine : JCSM : official publication of the American Academy of Sleep Medicine · 2015Article
- Outcomes of children with severe bronchopulmonary dysplasia who were ventilator dependent at home.Pediatrics · 2013Article
- Investigation and management of childhood sleep apnoea.Hippokratia · 2013Review
- Increasing prevalence of domiciliary ventilation: changes in service demand and provision in the South West of the UK.European journal of pediatrics · 2011Article
- Inpatient health care utilization for children dependent on long-term mechanical ventilation.Pediatrics · 2011Article
- The relationship between home nursing coverage, sleep, and daytime functioning in parents of ventilator-assisted children.Journal of pediatric nursing · 2010Article
- Home oxygen for children: who, how and when?Thorax · 2005Review
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesTo identify the number and current location of children, aged 0 to 16 years, requiring long term ventilation in the United Kingdom, and to establish their underlying diagnoses and ventilatory needs.
designPostal questionnaires sent to consultant respiratory paediatricians and all lead clinicians of intensive care and special care baby units in the United Kingdom. SUBJECTS: All children in the United Kingdom who, when medically stable, continue to need a mechanical aid for breathing.
results141 children requiring long term ventilation were identified from the initial questionnaire. Detailed information was then obtained on 136 children from 30 units. Thirty three children (24%) required continuous positive pressure ventilation by tracheostomy over 24 hours, and 103 received ventilation when asleep by a non-invasive mask (n=62; 46%), tracheostomy (n=32; 24%), or negative pressure ventilation (n=9; 7%). Underlying conditions included neuromuscular disease (n=62; 46%), congenital central hypoventilation syndrome (n=18; 13%), spinal injury (n=16; 12%), craniofacial syndromes (n=9; 7%), bronchopulmonary dysplasia (n=6; 4%), and others (n=25; 18%). 93 children were cared for at home. 43 children remained in hospital because of home circumstances, inadequate funding, or lack of provision of home carers. 96 children were of school age and 43 were attending mainstream school.
conclusionsA significant increase in the number of children requiring long term ventilation in the United Kingdom has occurred over the past decade. Contributing factors include improved technology, developments in paediatric non-invasive ventilatory support, and a change in attitude towards home care. Successful discharge home and return to school is occurring even for severely disabled patients. Funding and home carers are common obstacles to discharge.
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