ReviewAmerican journal of human genetics1994
Human genome research and the public interest: progress notes from an American science policy experiment.
Review in American journal of human genetics, 1994. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
10 citing papers in PubMed.
- From reading to writing genomes: a new direction in ELSI.Frontiers in genetics · 2025Article
- Three decades of ethical, legal, and social implications research: Looking back to chart a path forward.Cell genomics · 2022Article
- Anticipating the ethical, legal, and social implications of human genome research: An ongoing experiment.American journal of medical genetics. Part A · 2021Article
- The Return of Lombroso? Ethical Aspects of (Visions of) Preventive Forensic Screening.Public health ethics · 2015Article
- Bioethics methods in the ethical, legal, and social implications of the human genome project literature.Bioethics · 2014Review
- Genetic research and aboriginal and Torres Strait Islander Australians.Journal of bioethical inquiry · 2012Article
- IRB perspectives on the return of individual results from genomic research.Genetics in medicine : official journal of the American College of Medical Genetics · 2012Article
- Genetic research, adolescents, and informed consent.Theoretical medicine · 1995Review
- The Evolving Genome Project: current and future impact.American journal of human genetics · 1994Review
- Integrating Public Health and Deliberative Public Bioethics: Lessons from the Human Genome Project Ethical, Legal, and Social Implications Program.Public health reports (Washington, D.C. : 1974)Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
1 author.
Funding
No grant is acknowledged in the PubMed record.
Abstract
This essay reviews the efforts of the U.S. Human Genome Project to anticipate and address the ethical, legal, and social implications of new advances in human genetics. Since 1990, approximately $10 million has been awarded by the National Institutes of Health and the Department of Energy, in support of 65 research, education, and public discussion projects. These projects address four major areas of need: (1) the need for both client-centered assessments of new genetic services and for improved knowledge of the psychosocial and ethnocultural factors that shape clients' clinical genetic experiences; (2) the need for clear professional policies regarding human-subject research, clinical practice standards, and public health goals in human genetics; (3) the need for social policy protection against unfair access to and use of personal genetic information; and (4) the need for improved public and professional understanding and discussion of these issues. The Human Genome Project's goal is to have defined, by 1995, policy options and programs capable of addressing these needs.
Indexed as
Identifiers
8279462PMC1918076What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.