Evidence map›Paper›PMID 7841967›Full record

ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation1994

Development of the kidney disease quality of life (KDQOL) instrument.

R D Hays, J D Kallich, D L Mapes, S J Coons, W B Carter

5 registry-linked trialsAbstract readMulticenter Study
PubMed Publisher
In one paragraph

Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 1994. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 5 registered trials, which are not on this map. Cited by 496 papers, 7 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
496citing papers in PubMed, 7 pooled it
5.0field-weighted citation impact, top 5% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT01067963 naterminatednot on this mapstarted 2009, after this paper: background citation

Self-management of Type 2 Diabetes and Chronic Kidney Disease

TypeinterventionalSponsorUniversity of Colorado, DenverRan2009 to 2012Enrolled80ConditionsDiabetes Mellitus, Type 2, Renal Insufficiency, ChronicArmsComputer assisted education and motivational interviewing., Group talks/social chat
NCT03779126 naunknown statusnot on this mapstarted 2018, after this paper: background citation

Efficacy of Combined Low- and High- Frequency Stimulation in Peripheral Muscle Function During Hemodialysis

TypeinterventionalSponsorHospital Sirio-LibanesRan2018 to 2025Enrolled56ConditionsChronic Kidney DiseasesArmsElectrical stimulation
NCT05466773 nacompletednot on this mapstarted 2019, after this paper: background citation

Hemodialysis Eating Education Intervention to Improve the Depression, Treatment Adherence, Cardiovascular Risks, Quality of Life, and Healthcare Utilization Among Hemodialysis Patients: A Quasi-experimental Design

TypeinterventionalSponsorTaipei Medical UniversityRan2019 to 2022Enrolled141ConditionsHemodialysis ComplicationArmsHemodialysis eating index (HDEI) base education intervention
NCT05560737 unknown statusnot on this mapstarted 2021, after this paper: background citation

ODYSSEE-vCHAT Mental Health Study: A Virtual Community Promoting Health Literacy, Self-Care, and Peer Support for Heart Failure and Kidney Disease

Typeobservational_patient_registrySponsorUniversity Health Network, TorontoRan2021 to 2023Enrolled215ConditionsChronic Heart Failure, Chronic Kidney DiseasesArmsODYSSEE-vCHAT
NCT06324045 narecruitingnot on this mapstarted 2024, after this paper: background citation

Development and Evaluation of a Multidisciplinary Team Delivered Deprescribing Intervention for Patients With Chronic Kidney Disease in Qatar: A Randomized Controlled Trial

TypeinterventionalSponsorHamad Medical CorporationRan2024 to 2026Enrolled424ConditionsChronic Kidney DiseasesArmsDeprescribing
3 · Its place in the literature

Who cites it

496 citing papers in PubMed, 7 syntheses or guidelines pooled it, 1,175 citations in OpenAlex.

  1. Pooled it
  2. Health-related quality of life in chronic kidney disease patients in low- and lower-middle income countries: a systematic review and meta-analysis.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Pooled it
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  6. Measuring quality of life in trials including patients on haemodialysis: methodological issues surrounding the use of the Kidney Disease Quality of Life Questionnaire.Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association · 2022
    Pooled it
  7. Effects of intradialytic exercise on health-related quality of life in patients undergoing maintenance haemodialysis: a systematic review and meta-analysis.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022
    Pooled it
  8. Trial
  9. Final Results of the ILLUMINATE-A Phase 3 Clinical Trial of Lumasiran for Primary Hyperoxaluria 1.Clinical journal of the American Society of Nephrology : CJASN · 2026
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  16. Mapping the Edmonton Symptom Assessment System-Revised: Renal to the EQ-5D-5L in patients with chronic kidney disease.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022
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436 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 4 institutions in 1 country.

R D HaysRAND, Social Policy Department, Santa Monica, CA 90407-2138.
J D Kallich
D L Mapes
S J Coons
W B Carter
Amgen (United States) · USeHealth Initiative · USRAND Corporation · USUniversity of Arizona · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

This paper describes the Kidney Disease Quality of Life (KDQOL) Instrument (dialysis version), a self-report measure that includes a 36-item health survey as the generic core, supplemented with multi-item scales targeted at particular concerns of individuals with kidney disease and on dialysis (symptom/problems, effects of kidney disease on daily life, burden of kidney disease, cognitive function, work status, sexual function, quality of social interaction, sleep). Also included were multi-item measures of social support, dialysis staff encouragement and patient satisfaction, and a single-item overall rating of health. The KDQOL was administered to 165 individuals with kidney disease (52% female; 48% male; 47% White; 27% African-American; 11% Hispanic; 8% Asian; 4% Native American; and 3% other ethnicities), sampled from nine different outpatient dialysis centres located in Southern California, the Northwest, and the Midwest. The average age of the sample was 53 years (range from 22 to 87), and 10% were 75 years or older. Internal consistency reliability estimates for the 19 multi-item scales exceeded 0.75 for every measure except one. The mean scores for individuals in this sample on the 36-item health scales were lower than the general population by one-quarter (emotional well-being) to a full standard deviation (physical function, role limitations due to physical health, general health), but similar to scores for dialysis patients in other studies. Correlations of the KDQOL scales with number of hospital days in the last 6 months were statistically significant (p < 0.05) for 14 of the 19 scales and number of medications currently being taken for nine of the scales. Results of this study provide support for the reliability and validity of the KDQOL.

Indexed as

Health Status IndicatorsQuality of LifeAdultAgedAged, 80 and overEvaluation Studies as TopicFemaleHealth Services ResearchHumansKidney DiseasesMaleMiddle AgedPopulation SurveillanceRenal DialysisReproducibility of ResultsSurveys and Questionnaires

Identifiers

PMID7841967
OpenAlexW2046644339

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.