The genetic testing of children. Working Party of the Clinical Genetics Society (UK)

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

Who cites it

73 citing papers in PubMed, 3 syntheses or guidelines pooled it.

1. Impact of presymptomatic genetic testing on young adults: a systematic review.European journal of human genetics : EJHG · 2016
   Pooled it
2. Best practice guidelines for molecular genetic diagnosis of cystic fibrosis and CFTR-related disorders--updated European recommendations.European journal of human genetics : EJHG · 2009
   Guideline
3. Policy recommendations for carrier testing and predictive testing in childhood: a distinction that makes a real difference.Journal of genetic counseling · 2005
   Guideline
4. Predicting age of onset and progression of disease in late-onset genetic neurodegenerative diseases: An ethics review and research agenda.European journal of human genetics : EJHG · 2024
   Review
5. Can Genomics Remove Uncertainty from Adoption? Social Workers' and Medical Advisors' Accounts of Genetic Testing.British journal of social work · 2022
   Article
6. 'We Should View Him as an Individual': The Role of the Child's Future Autonomy in Shared Decision-Making About Unsolicited Findings in Pediatric Exome Sequencing.Health care analysis : HCA : journal of health philosophy and policy · 2021
   Article
7. Citizens under the umbrella: citizenship projects and the development of genetic umbrella organizations in the USA and the UK.New genetics and society · 2020
   Article
8. Ethical Issues in Newborn Sequencing Research: The Case Study of BabySeq.Pediatrics · 2019
   Article
9. Rethinking the "open future" argument against predictive genetic testing of children.Genetics in medicine : official journal of the American College of Medical Genetics · 2019
   Article
10. "They Just Want to Know" - Genetic Health Professionals' Beliefs About Why Parents Want to Know their Child's Carrier Status.Journal of genetic counseling · 2017
    Article
11. Predictive Genetic Testing of Children for Adult-Onset Conditions: Negotiating Requests with Parents.Journal of genetic counseling · 2017
    Article
12. Why Do Parents Want to Know their Child's Carrier Status? A Qualitative Study.Journal of genetic counseling · 2016
    Article
13. A qualitative study to explore how professionals in the United Kingdom make decisions to test children for a sickle cell carrier status.European journal of human genetics : EJHG · 2016
    Article
14. Non-invasive prenatal testing for aneuploidy and beyond: challenges of responsible innovation in prenatal screening.European journal of human genetics : EJHG · 2015
    Article
15. Genetic testing of children for adult-onset conditions: opinions of the British adult population and implications for clinical practice.European journal of human genetics : EJHG · 2015
    Article
16. Carrier testing in children: exploration of genetic health professionals' practices in Australia.Genetics in medicine : official journal of the American College of Medical Genetics · 2015
    Article
17. The best interests of the child and the return of results in genetic research: international comparative perspectives.BMC medical ethics · 2014
    Article
18. Disparities in current and future childhood and newborn carrier identification.Journal of genetic counseling · 2014
    Article
19. Accepting adoption's uncertainty: the limited ethics of pre-adoption genetic testing.Journal of bioethical inquiry · 2014
    Article
20. Informing children of their newborn screening carrier result for sickle cell or cystic fibrosis: qualitative study of parents' intentions, views and support needs.Journal of genetic counseling · 2014
    Article

13 more citing papers are in PubMed but not listed here.

Corrections and comments

• Commented on by
  The genetic testing of children.1994
• Commented on by
  Parents' responses to predictive genetic testing in their children.1997

Authors and funding

1 author.

Funding

No grant is acknowledged in the PubMed record.

Abstract

PubMed holds no abstract for this paper.

Indexed as