ArticleBMJ (Clinical research ed.)1995
What do I want from health research and researchers when I am a patient?
Article in BMJ (Clinical research ed.), 1995. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 60 papers, 5 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
60 citing papers in PubMed, 5 syntheses or guidelines pooled it.
- Effectiveness of exercise therapy for osteoarthritis: an overview of systematic reviews and randomised controlled trials.RMD open · 2026Pooled it
- Who can you trust? A review of free online sources of "trustworthy" information about treatment effects for patients and the public.BMC medical informatics and decision making · 2019Pooled it
- Black and minority ethnic group involvement in health and social care research: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2018Pooled it
- Patient and service user engagement in research: a systematic review and synthesized framework.Health expectations : an international journal of public participation in health care and health policy · 2015Pooled it
- Mapping the impact of patient and public involvement on health and social care research: a systematic review.Health expectations : an international journal of public participation in health care and health policy · 2014Pooled it
- The impact of Patient and Public Involvement in the SlowMo study: Reflections on peer innovation.Health expectations : an international journal of public participation in health care and health policy · 2022Trial
- N of 1, two contemporary arm, randomised controlled clinical trial for bilateral epicondylitis: a new study design.BMJ (Clinical research ed.) · 2011Trial
- Consulting parents about the design of a randomized controlled trial of osteopathy for children with cerebral palsy.Health expectations : an international journal of public participation in health care and health policy · 2011Trial
- Self management, joint protection and exercises in hand osteoarthritis: a randomised controlled trial with cost effectiveness analyses.BMC musculoskeletal disorders · 2011Trial
- Navigating care together: developing a collaborative checklist to improve care for children with intellectual disabilities.Research involvement and engagement · 2025Article
- Exploring Experiences and Designing Guidance for Involving and Engaging Children and Young People in James Lind Alliance Priority Setting Partnerships.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- It's personal: navigating research questions that stem from our lived experiences.International journal of epidemiology · 2024Article
- The academic impact of paediatric research agendas: a descriptive analysis.Research involvement and engagement · 2024Article
- Using Participatory Action Research to Redirect Tinnitus Treatment and Research-An Interview Study.Journal of clinical medicine · 2024Article
- Patient and public involvement and engagement (PPIE): how valuable and how hard? An evaluation of ALL_EARS@UoS PPIE group, 18 months on.Research involvement and engagement · 2024Article
- Pragmatic design and inclusion of patient-partner representatives improves participant experience in clinical research.OTA international : the open access journal of orthopaedic trauma · 2023Article
- Research Buddy partnership in a MD-PhD program: lessons learned.Research involvement and engagement · 2023Article
- Involving Patient Partners in the KRESCENT Peer Review: Intent, Process, Challenges, and Opportunities.Canadian journal of kidney health and disease · 2022Article
- A protocol to evaluate the impact of embedding Public and Patient Involvement in a structured PhD program for stroke care.Frontiers in rehabilitation sciences · 2022Article
- Patient-partner engagement at the Centre de recherche du CHUS in the Province of Québec, Canada: from an intuitive methodology to outreach after three years of implementation.Research involvement and engagement · 2021Article
Corrections and comments
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Authors and funding
1 author.
Funding
No grant is acknowledged in the PubMed record.
Abstract
I have attempted to adopt the perspective of a patient--albeit one with a rather atypical background--to explore what I want from health research and researchers. This has left me with the impression that health researchers could serve the interests of the public more effectively in a variety of ways, and that they would be helped to do so by greater lay involvement in planning and promoting health research.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.