ArticleBMC health services research2026
Shared decision making in inflammatory bowel disease: a qualitative study with patients, gastroenterologists, and nurses.
Article in BMC health services research, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
11 authors.
Funding
Abstract
backgroundShared decision making (SDM) is a key component of patient-centered care and is increasingly emphasized in the management of inflammatory bowel disease (IBD). However, insights into the implementation of SDM in IBD care and influencing factors remain limited. This study aimed to (1) investigate the implementation of SDM in IBD clinical practice, including the role of the IBD nurse in this process, and (2) identify barriers and facilitators for implementation.
methodsSemi-structured interviews were conducted with IBD patients (n = 15), gastroenterologists (n = 11), and IBD nurses (n = 12) across Belgium. Interviews were transcribed verbatim and analyzed using a thematic framework method.
resultsWhile gastroenterologists reported routinely incorporating most SDM steps into practice, patients described inconsistencies, particularly around emotional support, clarity of information, and elicitation of preferences. Participants viewed IBD nurses as essential partners in the SDM process, complementing the role of gastroenterologists by reinforcing information, facilitating communication, and addressing patients' physical, emotional, and social needs. Low health literacy and disease-related knowledge among patients, poor communication, and time constraints emerged as major barriers. In contrast, key facilitators were the perceived clinical and relational benefits of SDM, greater awareness of SDM, and enhanced education for both patients and providers.
conclusionsAlthough SDM is recognized in IBD care, its implementation remains inconsistent due to structural and interpersonal barriers. Results from this study point toward the need for SDM training and organizational changes, such as recognizing and further strengthening the role of the IBD nurse in the SDM process. Demonstrating and promoting the intrinsic and consequential benefits of SDM, such as improved care quality, patient adherence, and professional fulfillment, may further support its widespread adoption. These findings can inform multi-stakeholder strategies for embedding SDM more consistently in IBD care.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.