Evidence map›Paper›PMID 42904583›Full record

ArticleScandinavian journal of caring sciences2026

Experiences of Healthcare Professionals in Home Based-Caring for Children With Type 1-Diabetes in Vulnerable Positions: A Qualitative Study.

Marie Nedergaard Jeppesen, Jane Clemensen, Malene Søborg Heidemann, Birgitte Hertz, Bodil Rasmussen, Mette Juel Rothmann

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Article in Scandinavian journal of caring sciences, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Marie Nedergaard JeppesenSteno Diabetes Centre Odense, Odense University Hospital, Odense, Denmark.ORCID https://orcid.org/0000-0002-3782-2812
Jane ClemensenDepartment of Clinical Research, University of Southern Denmark, Odense, Denmark.ORCID https://orcid.org/0000-0002-6127-1010
Malene Søborg HeidemannDepartment of Hans Christian Andersen Children's Hospital, Odense University Hospital, Odense, Denmark.ORCID https://orcid.org/0000-0002-6345-3264
Birgitte HertzThe Children and Youth Department, Hospital of Lillebælt, Institute of Regional Healthcare Research, Kolding, Denmark.ORCID https://orcid.org/0009-0007-1986-1512
Bodil RasmussenSteno Diabetes Centre Odense, Odense University Hospital, Odense, Denmark.ORCID https://orcid.org/0000-0002-6789-8260
Mette Juel RothmannSteno Diabetes Centre Odense, Odense University Hospital, Odense, Denmark.ORCID https://orcid.org/0000-0001-6505-4163

Funding

Region SyddanmarkSteno diabetes center OdenseSyddansk Universitet
6 · The paper itself

Abstract

introductionProviding home-based care to children with type 1 diabetes (T1D) places healthcare professionals (HCPs) in complex and demanding practice contexts. Outside the clinic, HCPs must adapt their expertise to families' everyday lives, navigate shifting roles and manage emotional and relational challenges, particularly when working with vulnerable families. These situations often involve competing priorities, social constraints and complex family dynamics that challenge conventional care approaches and require additional competencies and support. Despite this, HCPs' perspectives remain underexplored. Therefore, this study aims to explore how HCPs experience, interpret and respond to the challenges and needs that arise when delivering diabetes care in the homes of children with T1D and their families in vulnerable positions.

methodsA qualitative study with a phenomenological-hermeneutical approach inspired by Paul Ricoeur's philosophy of interpretation and narrative was conducted using 75 h of field observations and two focus group interviews with 14 HCPs. Data were analysed through naïve reading, structural analysis and critical interpretation.

resultsHome-based diabetes care was experienced as an ongoing process of learning and development, involving the expansion of competencies and the renegotiation of professional roles. Expert knowledge as the foundation for care provided stability but required adaptation to family contexts. Interpersonal work and emotional challenges involved building trust, managing relationships and coping with emotional strain and uncertainty. New and unfamiliar issues included encountering complex psychosocial problems, ethical dilemmas and role ambiguity, often beyond HCPs' expertise. Together, these dimensions illustrate how home-based care demands flexibility, emotional engagement and broader competencies, while increasing the need for supervision, peer support and organisational guidance.

conclusionsHome-based T1D care in vulnerable families is experienced as a complex, evolving practice requiring adaptable clinical and relational competencies, emotional engagement and role flexibility. Increased psychosocial demands highlight the need for structured education, supervision, organisational support and strengthened multidisciplinary and intersectoral collaboration.

Indexed as

Diabetes Mellitus, Type 1Health PersonnelHome Care ServicesVulnerable PopulationsAdultChildFemaleHumansMaleQualitative Researchchildhealth personnelhospital‐based home care servicesprofessional‐family relationsqualitative researchsocioeconomic disparities in healthtype 1 diabetes mellitus

Identifiers

PMID42904583
PMCPMC13685057

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.