Evidence map›Paper›PMID 42897575›Full record

ArticleBMC pulmonary medicine2026

Needs among persons with advanced COPD and their informal caregivers: a multi-perspective qualitative study focusing on the potential role of palliative care.

Kira Schmidt-Stiedenroth, Julia Salandi, Alexandra Schmidt, Balam Er Dedekarginoglu, Stefanie Paniczek, Manuela Schallenburger, Anette Scholz, Jacqueline Schwartz, Kathrin Fricke, Stefanie Keymel and 3 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC pulmonary medicine, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Kira Schmidt-StiedenrothInstitute for Occupational, Social, and Environmental Medicine, Centre for Health and Society, Medical Faculty and University Hospital Düsseldorf, Heinrich Heine University Düsseldorf, Düsseldorf, Germany. kira.schmidt.stiedenroth@uni-duesseldorf.de.
Julia SalandiInstitute for Occupational, Social, and Environmental Medicine, Centre for Health and Society, Medical Faculty and University Hospital Düsseldorf, Heinrich Heine University Düsseldorf, Düsseldorf, Germany.
Alexandra SchmidtInstitute of General Practice and Primary Care (iamag), Chair of General Practice II and Patient-Centredness in Primary Care, Witten/Herdecke University, Witten, Germany.
Balam Er DedekarginogluClinic for Cardiology, Pulmonology & Angiology, Medical Faculty and University Hospital Düsseldorf, Heinrich Heine University Düsseldorf, Düsseldorf, Germany.
Stefanie PaniczekInterdisciplinary Centre of Palliative Care, Medical Faculty and University Hospital Düsseldorf, Heinrich Heine University Düsseldorf, Düsseldorf, Germany.
Manuela SchallenburgerInterdisciplinary Centre of Palliative Care, Medical Faculty and University Hospital Düsseldorf, Heinrich Heine University Düsseldorf, Düsseldorf, Germany.
Anette ScholzInstitute of General Practice and Primary Care (iamag), Chair of General Practice II and Patient-Centredness in Primary Care, Witten/Herdecke University, Witten, Germany.
Jacqueline SchwartzInterdisciplinary Centre of Palliative Care, Medical Faculty and University Hospital Düsseldorf, Heinrich Heine University Düsseldorf, Düsseldorf, Germany.
Kathrin FrickeClinic for Cardiology, Pulmonology & Angiology, Medical Faculty and University Hospital Düsseldorf, Heinrich Heine University Düsseldorf, Düsseldorf, Germany.
Stefanie KeymelClinic of Pneumology and Allergology, Center for Sleep Medicine and Respiratory Care, Institute of Pneumology, Bethanien Hospital, University of Cologne, Solingen, Germany.
Achim MortsieferInstitute of General Practice and Primary Care (iamag), Chair of General Practice II and Patient-Centredness in Primary Care, Witten/Herdecke University, Witten, Germany.
Martin NeukirchenInterdisciplinary Centre of Palliative Care, Medical Faculty and University Hospital Düsseldorf, Heinrich Heine University Düsseldorf, Düsseldorf, Germany.
Adrian LoerbroksInstitute for Occupational, Social, and Environmental Medicine, Centre for Health and Society, Medical Faculty and University Hospital Düsseldorf, Heinrich Heine University Düsseldorf, Düsseldorf, Germany.

Funding

Deutsche Forschungsgemeinschaft 517269596
6 · The paper itself

Abstract

objectivesTo explore needs among persons with advanced COPD and informal caregivers, and to explore how palliative care can address those needs.

backgroundCOPD is a common, progressive disease affecting lung function and represents a leading cause of death. Advanced COPD is associated with a high symptom burden and poor quality of life. Persons with advanced COPD may benefit from palliative care, but its use among persons with COPD remains limited, also in Germany.

methodsA qualitative, multi-perspective interview study was conducted with persons suffering from advanced COPD, informal caregivers, and formal caregivers (general practitioners, pulmonologists, and palliative care physicians). A total of 53 interviews were analysed following structuring (Kuckartz') as well as latent content analysis methods using MAXQDA.

resultsKey needs were identified in the following domains (1) management of dyspnoea and anxiety, (2) home-based healthcare, (3) emergency planning and support, (4) psychosocial care, (5) organisational support, and (6) timely information about COPD and palliative care. Persons who had previously received PC reported various needs met in the first five areas.

conclusionsPersons with advanced COPD and their informal caregivers reported numerous needs. Persons receiving palliative care reported relief from various needs. Timely information about COPD's progression and palliative care could increase acceptance and thus use of palliative care among these persons and could consequently reduce or curtail the burden of living with advanced COPD.

Indexed as

CaregiversHealth Services Needs and DemandPalliative CarePulmonary Disease, Chronic ObstructiveAdultAgedAged, 80 and overAnxietyDyspneaFemaleGermanyHome Care ServicesHumansInterviews as TopicMaleMiddle AgedCOPDGermanyHealth services researchNeedsPalliative carePatient-oriented healthcareQualitative research

Identifiers

PMID42897575
PMCPMC13681904

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.