Evidence map›Paper›PMID 42888440›Full record

ReviewPediatric rheumatology online journal2026

Methods for developing and validating outcome measures in paediatric rheumatology.

Rafael Curbelo, María Jesús García de Yébenes, Loreto Carmona

Abstract readReview
PubMed Publisher
In one paragraph

Review in Pediatric rheumatology online journal, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Rafael CurbeloInstituto de Salud Musculoesquelética, Calle Méndez Álvaro, 20, Madrid, 28045, Spain.
María Jesús García de YébenesInstituto de Salud Musculoesquelética, Calle Méndez Álvaro, 20, Madrid, 28045, Spain.ORCID http://orcid.org/0000-0003-0358-6070
Loreto CarmonaInstituto de Salud Musculoesquelética, Calle Méndez Álvaro, 20, Madrid, 28045, Spain. loreto.carmona@inmusc.eu.ORCID https://orcid.org/0000-0002-4401-2551

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Developing and validating patient-reported outcome measures (PROMs) requires a specific methodology to ensure that these tools reliably capture patients' subjective experiences of health without clinician bias, thereby supporting their use in patient-centred care for children with chronic diseases. The aim of this article is to review this methodology, emphasising its advantages, and identify unmet needs and priorities for future research in this area. It also introduces the COSMIN and OMERACT initiatives and related aids, as well as the EULAR OML, all of which are critical for developing and selecting the most adequate PROMs in Paediatric Rheumatology.

Indexed as

Patient Reported Outcome MeasuresPediatricsRheumatic DiseasesRheumatologyChildHumansReproducibility of ResultsChildrenCOSMINMethodologyOMERACTPatient-reported outcomesReliabilityRheumatologyValidation studiesValidity

Identifiers

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.