Evidence map›Paper›PMID 42877263›Full record

ArticleFrontiers in health services2026

Shared decision-making for patients with psychotic disorders: validating the measure "collaboRATE for Next of Kin acting to support patient autonomy".

Roar Fosse, Irene Norheim, Jan Ivar Røssberg, Maria Romøren, Kristin Sverdvik Heiervang, Lars Hestmark, Reidar Pedersen

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Article in Frontiers in health services, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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5 · Who and what money

Authors and funding

7 authors.

Roar FosseDivision of Mental Health and Addiction, Vestre Viken Hospital Trust, Drammen, Norway.
Irene NorheimDivision of Mental Health and Addiction, Vestre Viken Hospital Trust, Drammen, Norway.
Jan Ivar RøssbergInstitute of Clinical Medicine, University of Oslo, Oslo, Norway.
Maria RomørenCentre for Medical Ethics, University of Oslo, Oslo, Norway.
Kristin Sverdvik HeiervangCentre for Medical Ethics, University of Oslo, Oslo, Norway.
Lars HestmarkCentre for Medical Ethics, University of Oslo, Oslo, Norway.
Reidar PedersenCentre for Medical Ethics, University of Oslo, Oslo, Norway.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Introduction: Family involvement and shared decision-making (SDM) are key elements in current mental health treatment. While it is important to measure the level of SDM from the perspective of relatives, suitable validated measures are lacking. Moreover, supported decision-making has gradually been emphasized more than substituted decision-making. In a large-scale implementation study of family involvement in the treatment of psychosis, we explored SDM for patients' closest relatives. We present the first validation of a three-item instrument to evaluate SDM for relatives acting to support patient autonomy, building on existing collaboRATE measures. Methods: For the new collaboRATE measure for relatives, we assessed scale reliability and concurrent and discriminant validity using available data from our implementation study. The study included relatives of patients treated for psychosis at community mental health centers, with data acquired and analyzed at baseline ( Results: The new collaboRATE measure for relatives had excellent scale reliability, with Cronbach's alpha values ranging from 0.91 to 0.95. Scores on the collaboRATE for relatives were correlated with the scores on matching items from the Carer Well-Being and Support questionnaire, with Pearson Conclusion: These validation data provide initial support for the new collaboRATE measure to assess SDM from the perspective of relatives supporting patient autonomy, although further validations are needed.

Indexed as

caregiverscollaboRATE measurefamily involvementshared decision-makingsupported decision-making

Identifiers

PMID42877263
PMCPMC13662159

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