Evidence map›Paper›PMID 42876882›Full record

ArticleJournal of Alzheimer's disease reports

What does dementia mean to you? Perceptions of dementia and aging among Indigenous older adults living in a Pueblo community.

Katherine Edwards, Tamar Ginossar, Steven P Verney, Alfonso Cheromiah, Teresa Meehan, Malanie Garcia, Mallery Quetawki, Nicholas Shaff, Natalie Hoffman, Jillian Prestopnik and 5 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of Alzheimer's disease reports. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Katherine EdwardsDepartment of Psychology, University of New Mexico, Albuquerque, NM, USA.ORCID https://orcid.org/0009-0003-3282-2578
Tamar GinossarDepartment of Communications, University of New Mexico, Albuquerque, NM, USA.
Steven P VerneyDepartment of Psychology, University of New Mexico, Albuquerque, NM, USA.
Alfonso CheromiahDepartment of Psychology, University of New Mexico, Albuquerque, NM, USA.
Teresa MeehanDepartment of Psychology, University of New Mexico, Albuquerque, NM, USA.
Malanie GarciaDepartment of Psychology, University of New Mexico, Albuquerque, NM, USA.
Mallery QuetawkiDepartment of Psychology, University of New Mexico, Albuquerque, NM, USA.ORCID https://orcid.org/0000-0002-2601-5986
Nicholas ShaffMind Research Network, Department of Translational Neuroscience, Albuquerque, NM, USA.
Natalie HoffmanMind Research Network, Department of Translational Neuroscience, Albuquerque, NM, USA.
Jillian PrestopnikCenter for Memory and Aging, Department of Neurology, University of New Mexico, Albuquerque, NM, USA.
Gary RosenbergCenter for Memory and Aging, Department of Neurology, University of New Mexico, Albuquerque, NM, USA.
Annalise Rahman-FilipiakDepartment of Psychiatry, University of Michigan, Ann Arbor, MI, USA.ORCID https://orcid.org/0000-0001-6711-6356
Jessica D RichardsonCenter for Memory and Aging, Department of Neurology, University of New Mexico, Albuquerque, NM, USA.
Vallabh ShahDepartment of Internal Medicine, University of New Mexico, Albuquerque, NM, USA.
Sephira RymanMind Research Network, Department of Translational Neuroscience, Albuquerque, NM, USA.

Funding

NM-INBRE Sequencing and Bioinformatics CoreP20GM103451 · NIGMS · NEW MEXICO STATE UNIVERSITY LAS CRUCES · PI Charlotte C. Gard · 2012 to 2026
$61.2M
UNM HSC Clinical and Translational Science CenterUL1TR001449 · NCATS · UNIVERSITY OF NEW MEXICO HEALTH SCIS CTR · PI CAMPEN, MATTHEW J, PANDHI, NANCY · 2015 to 2024
$36.9M
Research Education ComponentP30AG086404 · NIA · UNIVERSITY OF NEW MEXICO HEALTH SCIS CTR · PI ELAINE L BEARER · 2024 to 2026
$17.7M
Scientific CoreP20AG068077 · NIA · UNIVERSITY OF NEW MEXICO HEALTH SCIS CTR · PI BHASKAR, KIRAN · 2020 to 2022
$3.1M
NCATS NIH HHS UL1 TR001449NIA NIH HHS P20 AG068077NIA NIH HHS P30 AG086404NIGMS NIH HHS P20 GM103451
6 · The paper itself

Abstract

Background: Alzheimer's disease (AD) and related dementias (ADRD) are a rapidly growing cause of morbidity and mortality in the United States, yet little is known about how these conditions are understood within American Indian (AI) communities. Limited alignment between biomedical models and community conceptualizations may hinder culturally appropriate care and research engagement. Objective: This study aimed to explore how aging and dementia are conceptualized among older adults in a Pueblo community, with the goal of informing culturally congruent dementia care, education, and research practices. Methods: In partnership with a local health and wellness center and tribal government, semi-structured interviews and questionnaires were administered to 32 older AI adults in a Pueblo community in New Mexico. Data were analyzed using thematic qualitative methods to identify perspectives on aging and dementia. Results: Dementia was described as memory loss, diminished independence, or altered sense of self. Explanations of causation extended beyond biomedical models to encompass lifestyle, psychological, historical, and environmental factors. Conclusions: Findings underscore the importance of understanding community-specific distinctions between "normal" and "abnormal" aging. Culturally grounded approaches that build trust, reduce uncertainty, and support open dialogue are essential for developing meaningful dementia education, assessment, and care that are community-driven and culturally responsive.

Indexed as

agingAlzheimer's diseaseAmerican Indian or Alaska Nativecultural competencydementiaIndigenous peoplesrural population

Identifiers

PMID42876882
PMCPMC13662317

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.