Evidence map›Paper›PMID 42873538›Full record

ArticleJMIR formative research2026

Key Decision Points for Personalization and Customization in Self-Guided Digital Suicide Prevention: Qualitative Interview Study.

Zhiying Quan, Catherine Chen, Sarah A Popowski, Theresa Nguyen, Kevin Rushton, Madhu Reddy, David C Mohr, Kimberly A Van Orden, Jonah Meyerhoff

Abstract read
In one paragraph

Article in JMIR formative research, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Zhiying QuanFeinberg School of Medicine, Northwestern University, 750 N. Lake Shore Dr. 10th Floor, Chicago, IL, 60611, United States, 1 312-503-1232.ORCID http://orcid.org/0009-0002-2366-1402
Catherine ChenFeinberg School of Medicine, Northwestern University, 750 N. Lake Shore Dr. 10th Floor, Chicago, IL, 60611, United States, 1 312-503-1232.ORCID http://orcid.org/0009-0004-5367-6984
Sarah A PopowskiFeinberg School of Medicine, Northwestern University, 750 N. Lake Shore Dr. 10th Floor, Chicago, IL, 60611, United States, 1 312-503-1232.ORCID http://orcid.org/0009-0000-2457-9377
Theresa NguyenMental Health America, Alexandria, VA, United States.ORCID http://orcid.org/0000-0001-9218-3198
Kevin RushtonMental Health America, Alexandria, VA, United States.ORCID http://orcid.org/0009-0009-1637-5943
Madhu ReddyDepartment of Informatics, Donald Bren School of Informatics and Computer Science, University of California, Irvine, CA, United States.ORCID http://orcid.org/0000-0002-6330-3637
David C MohrFeinberg School of Medicine, Northwestern University, 750 N. Lake Shore Dr. 10th Floor, Chicago, IL, 60611, United States, 1 312-503-1232.ORCID http://orcid.org/0000-0002-5443-7596
Kimberly A Van OrdenDepartment of Psychiatry, University of Rochester Medical Center, Rochester, NY, United States.ORCID http://orcid.org/0000-0001-9439-401X
Jonah MeyerhoffFeinberg School of Medicine, Northwestern University, 750 N. Lake Shore Dr. 10th Floor, Chicago, IL, 60611, United States, 1 312-503-1232.ORCID http://orcid.org/0000-0001-5149-7959

Funding

mHealth for suicide prevention: Design, development, and feasibility of a scalable SMS-based safety planning interventionK08MH128640 · NIMH · NORTHWESTERN UNIVERSITY AT CHICAGO · PI Jonah Meyerhoff · 2022 to 2026
$1.0M
Brain and Behavioral Mechanisms Linking Loneliness and Social Isolation with Accelerated Cognitive Aging and Alzheimer's Disease and Related DementiasK24AG084885 · NIA · UNIVERSITY OF ROCHESTER · PI Kimberly Allison Van Orden · 2024 to 2026
$493k
NIA NIH HHS K24 AG084885NIMH NIH HHS K08 MH128640
6 · The paper itself

Abstract

Background: Young adults in the United States experience high rates of suicidal thoughts and behaviors (STB) but low engagement with traditional care, highlighting the need for accessible and scalable digital interventions. Self-guided digital safety planning interventions (SPIs) can expand access to support but introduce important decisions about what content to deliver, when systems should intervene, and how users retain control over system actions. Personalization, defined as system-initiated adaptation, and customization, defined as user-initiated control, may offer complementary approaches to these decisions. However, how they should be coordinated to preserve autonomy and reduce burden during periods of distress remains unclear. Objective: This study aims to identify key decision points in self-guided digital SPIs and characterize what, when, how, and by whom (system or user) safety planning functions should be controlled. We further examined how personalization and customization can jointly support autonomy, reduce burden, and promote safety. Methods: Nine young adults (ages 18-24) with lived experience of suicidal thoughts and behaviors were recruited from an asynchronous remote community comprising individuals who had engaged with the Mental Health America (MHA) website. Participants completed semistructured individual interviews via Zoom. Three coders analyzed interview transcripts using codebook thematic analysis. One coder open-coded all transcripts to develop a preliminary codebook. Two additional coders then applied the codebook to overlapping transcripts, after which all coders revised the codebook and resolved discrepancies by consensus before coding the remaining transcripts. Themes were interpreted using the 5W1H (Who, What, Where, When, Why, and How) framework as an organizing lens for identifying and structuring decision points. Results: Participants identified 3 classes of decision points for self-guided digital SPIs: (1) system-level decisions about what content and actions are automatically provided; (2) user-level decisions about when and at what pace safety planning unfolds; and (3) shared decisions requiring coordination between users and the system. Participants favored system personalization of decision aids, coping suggestions, brainstorming prompts, example messages for contacting trusted others, affirmations, and relevant resources. In contrast, participants wanted control over the timing and pacing of safety planning and the representation and organization of their safety plans. Participants also emphasized that systems should obtain explicit permission before taking safety-relevant actions, such as contacting trusted others or connecting users with crisis counselors in response to increases in detected risk. Conclusions: Personalization and customization can function as complementary mechanisms for allocating decision authority within self-guided digital SPIs. The findings support a model of permissioned automation in which systems reduce cognitive and emotional burden through adaptive support while users retain control over safety-relevant actions. This decision-point framework provides a foundation for designing and evaluating self-guided suicide prevention technologies that balance adaptation, autonomy, and safety.

Indexed as

Decision MakingSuicide PreventionAdolescentDigital HealthDigital MediaFemaleHumansInterviews as TopicMaleQualitative ResearchSuicidal IdeationYoung Adultcustomizationdecision pointsdigital mental health interventionsdigital safety planning interventiondigital suicide preventionpersonalization

Identifiers

PMID42873538
PMCPMC13664982

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.