Evidence map›Paper›PMID 42872771›Full record

ArticleJournal of genetic counseling2026

Position Statement on the Regulation of Genetic Counselors in Canada on Behalf of National and Provincial Genetic Counselor Organizations.

Rachel Vanneste, Andrea Secord, Diane Myles Reid, Nadine Dumas, Chiquita Hessels, Margaret Lilley, Kennedy Borle, Hanna Faghfoury, Steffany Grondin, Nada Quercia and 4 more

Abstract readConsensus Statement
In one paragraph

Article in Journal of genetic counseling, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Rachel VannesteCanadian Board of Genetic Counselling, Oakville, Ontario, Canada.ORCID https://orcid.org/0000-0003-1282-2573
Andrea SecordQuebec Association of Genetic Counsellors, Montreal, Quebec, Canada.
Diane Myles ReidCanadian Association of Genetic Counsellors, Oakville, Ontario, Canada.
Nadine DumasCanadian Board of Genetic Counselling, Oakville, Ontario, Canada.
Chiquita HesselsLi Fraumeni Syndrome Association Canada, Nanaimo, British Columbia, Canada.
Margaret LilleyAlberta Association of Genetic Counsellors, Lethbridge, Alberta, Canada.ORCID https://orcid.org/0000-0003-1981-5851
Kennedy BorleSociety of Genetic Counsellors of British Columbia, Vancouver, British Columbia, Canada.ORCID https://orcid.org/0000-0001-5494-075X
Hanna FaghfouryFred A Litwin Family Centre in Genetic Medicine, University Health Network and Mount Sinai Hospital, Toronto, Ontario, Canada.
Steffany GrondinQuebec Association of Genetic Counsellors, Montreal, Quebec, Canada.ORCID https://orcid.org/0000-0002-7556-7672
Nada QuerciaDepartment of Molecular Genetics, University of Toronto, Toronto, Ontario, Canada.ORCID https://orcid.org/0000-0003-1482-4329
Anastasia RichardsonSociety of Genetic Counsellors of British Columbia, Vancouver, British Columbia, Canada.ORCID https://orcid.org/0009-0008-4605-0798
Josh SilverDepartment of Molecular Genetics, University of Toronto, Toronto, Ontario, Canada.
Ma'n H ZawatiDepartment of Human Genetics, Centre of Genomics and Policy, McGill University, Montreal, Quebec, Canada.
Jessica N HartleyCanadian Association of Genetic Counsellors, Oakville, Ontario, Canada.ORCID https://orcid.org/0000-0002-4221-8820

Funding

Canadian Association of Genetic CounsellorsCanadian Board of Genetic Counselling
6 · The paper itself

Abstract

Genetic Counselors (GCs) are an integral part of the Canadian health system across clinics, laboratories, and industry. Although most GCs meet educational and certification standards required by professional organizations and workplaces, the profession lacks consistent legal recognition in Canada. As genetic testing options expand, GC practice is extending into novel settings such as primary care and becoming more autonomous to meet growing demand and improve access to service. While GCs are regulated in countries with similar public healthcare systems such as Australia, New Zealand, and the United Kingdom, Canada has yet to establish this critical measure to protect the public against harms such as inaccurate risk assessment, incorrect or inappropriate genetic test ordering, misuse of healthcare resources and undue psychological distress. All national and provincial Canadian GC organizations endorse the need for regulatory oversight across Canadian provinces and territories and recommend that the Canadian Certified Genetic Counsellor (CCGC)/Conseiller(ère) en génétique agréé(e) du Canada (CGAC) credential be adopted as the standard for assessing competence. We call for coordinated action from provincial and territorial governments and Ministries of Health, as well as provincial and national medical and healthcare associations, healthcare providers, employers, patient groups, and our own organizations to advance the implementation of regulation and ultimately improve access to safe genetic healthcare for Canadians.

Indexed as

CounselorsGenetic CounselingCanadaHumansCanadian health policygenetic counselorsgenomic medicinehealthcare workforceprofessional regulationpublic protection

Identifiers

PMID42872771
PMCPMC13663842

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.