ReviewJournal of prevention (2022)2026
Where are the Public in Prevention Science? A Scoping Review of Public Involvement in the Development and Evaluation of Family-Based Prevention Interventions.
Review in Journal of prevention (2022), 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
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Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Public involvement (PI) - research conducted with or by members of the public - is increasingly recognised as essential to high-quality intervention research. However, its role in Prevention Science, including within family-based interventions, remains unclear. We conducted a scoping review following Arksey and O'Malley (2005), Levac et al. (2010) and JBI guidance (Peters et al., 2020). Peer-reviewed empirical studies published between January 2022 and December 2024 that reported the development, implementation or evaluation of community-based family prevention interventions were eligible. Searches across four databases identified 540 eligible studies at title/abstract screening. Using a fixed-interval random sampling approach, 81 full texts were reviewed, and 54 studies were included for in-depth analysis (≈ 10% of eligible papers). Data extraction captured the presence, scope, terminology, frameworks, and reported outcomes of PI. Only 3.7% (2/54) of included studies explicitly reported PI, with a further two describing its presence in linked publications from earlier phases of the same research. Within the analytic sample, explicit reporting of public involvement was uncommon across the range of countries, intervention types and research stages represented. Where present, PI was largely confined to intervention development, with no examples of PI informing the design or conduct of evaluations. No study used established PI frameworks (e.g., GRIPP2, Involve). Among the 50 studies with no identified PI, 26/50 (52%) collected participant feedback on intervention experiences, but this was conceptually distinct from PI. Public involvement in research on family-based prevention interventions appears extremely limited. Possible explanations include a genuine lack of PI activity, underreporting, and conceptual confusion between PI and participant feedback. Strengthening PI in Prevention Science will require clearer definitions, shared terminology, capacity building for researchers and public partners, and stronger expectations from journals and funders. Improved reporting will support cross-study learning and the development of good practice.
Indexed as
Identifiers
42859362What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.