Evidence map›Paper›PMID 42859362›Full record

ReviewJournal of prevention (2022)2026

Where are the Public in Prevention Science? A Scoping Review of Public Involvement in the Development and Evaluation of Family-Based Prevention Interventions.

Arsha Kaur, Layan Amouri, Ina Koning, Jeremy Segrott

Abstract readReview
PubMed Publisher
In one paragraph

Review in Journal of prevention (2022), 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Arsha KaurWales Council for Voluntary Action, Cardiff, Wales, UK.ORCID http://orcid.org/0009-0005-6596-6142
Layan AmouriSchool of Social Work, Lund University, Lund, Sweden.ORCID http://orcid.org/0009-0004-9243-7097
Ina KoningClinical Child and Family Studies, Vrije Universiteit, Amsterdam, The Netherlands.ORCID http://orcid.org/0000-0003-0305-0487
Jeremy SegrottCentre for Trials Research, DECIPHer Centre, Cardiff University, Cardiff, Wales, UK. segrottj@cardiff.ac.uk.ORCID http://orcid.org/0000-0001-6215-0870

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Public involvement (PI) - research conducted with or by members of the public - is increasingly recognised as essential to high-quality intervention research. However, its role in Prevention Science, including within family-based interventions, remains unclear. We conducted a scoping review following Arksey and O'Malley (2005), Levac et al. (2010) and JBI guidance (Peters et al., 2020). Peer-reviewed empirical studies published between January 2022 and December 2024 that reported the development, implementation or evaluation of community-based family prevention interventions were eligible. Searches across four databases identified 540 eligible studies at title/abstract screening. Using a fixed-interval random sampling approach, 81 full texts were reviewed, and 54 studies were included for in-depth analysis (≈ 10% of eligible papers). Data extraction captured the presence, scope, terminology, frameworks, and reported outcomes of PI. Only 3.7% (2/54) of included studies explicitly reported PI, with a further two describing its presence in linked publications from earlier phases of the same research. Within the analytic sample, explicit reporting of public involvement was uncommon across the range of countries, intervention types and research stages represented. Where present, PI was largely confined to intervention development, with no examples of PI informing the design or conduct of evaluations. No study used established PI frameworks (e.g., GRIPP2, Involve). Among the 50 studies with no identified PI, 26/50 (52%) collected participant feedback on intervention experiences, but this was conceptually distinct from PI. Public involvement in research on family-based prevention interventions appears extremely limited. Possible explanations include a genuine lack of PI activity, underreporting, and conceptual confusion between PI and participant feedback. Strengthening PI in Prevention Science will require clearer definitions, shared terminology, capacity building for researchers and public partners, and stronger expectations from journals and funders. Improved reporting will support cross-study learning and the development of good practice.

Indexed as

Family interventionsPatient and public involvement (PPI)Prevention SciencePublic involvementResearch methodsScoping review

Identifiers

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.