Observational studyEuropean journal of pediatrics2026
Parental expectations for specific follow-up after pediatric intensive care stay: a prospective observational cohort study.
Observational study in European journal of pediatrics, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Authors and funding
8 authors.
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Abstract
To assess parental expectations regarding specific follow-up after a pediatric intensive care unit (PICU) stay, and whether these expectations differ according to pediatric post-intensive care syndrome (PICS-p) risk factors. We also explored differences across four patient profiles based on age, pre-existing conditions, and progression toward chronic illness. This study was a questionnaire-based, prospective observational cohort study within the PICU of a French teaching hospital. The study population consisted of all children discharged alive from the PICU between July 2023 and June 2024. One month after discharge, a survey was sent via text message to parents, assessing their perceptions of the post-PICU experience and follow-up needs. Among 107 children included, 68 parents (63.6%) reported a need for structured follow-up. Interest was higher among parents perceiving difficulties in their child (p = 0.02) or after longer PICU stays (p = 0.04). Most (99 parents, 92.5%) favored initiating medical follow-up within three months of discharge. No significant differences were observed between patient categories. Data was analyzed using descriptive statistics and subgroup comparisons.
conclusionEarly, structured, post-PICU follow-up should be implemented to address diverse family needs. Priority should be given to children with longer stays or significant psychological trauma. Follow-up should be individualized based on an initial assessment. WHAT IS KNOWN: • Children and families may experience physical, psychological, cognitive, and social sequelae after a PICU stay, but parental expectations regarding post-PICU follow-up remain poorly described. WHAT IS NEW: • Most parents favored early structured follow-up after PICU discharge, regardless of patient profile. Perceived psychological difficulties and longer PICU stays were associated with demand for follow-up.
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