ArticleZeitschrift fur Rheumatologie2026
[Transition: between recommendations and real-world care : Results from the InfoTrans project].
Article in Zeitschrift fur Rheumatologie, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe transition from pediatric to adult rheumatology care represents a particular challenge for young people with juvenile idiopathic arthritis (JIA).
objectivesTo investigate the continuity of care, disease burden, transition competence and unmet needs among young adults with JIA. MATERIAL AND
methodsWithin the Innovation Fund project InfoTrans, a cross-sectional survey was conducted among- individuals insured with the Barmer health insurance aged 16-25 years with JIA and pseudonymously linked with health insurance claims data. For the present analysis, young adults aged 20 years and older with prior pediatric rheumatology care were included. Data collected comprised current healthcare utilization, patient-reported outcomes, transition competence (Transitions-KompAZ), and psychological well-being (WHO-5).
resultsAmong 269 surveyed young adults with JIA, 45% were receiving specialist rheumatology care. Participants receiving rheumatology care showed higher transition competence (22.7 vs. 19.0; p < 0.001), had more frequently attended a transition consultation (17% vs. 9%), and were more often aware of the website "mein-rheuma-wird-erwachsen.de" (33% vs. 20%; p = 0.013). Despite comparable disease burden, participants without specialist care received DMARD therapy less frequently (18% vs. 63%). Gaps in care were also observed among participants receiving rheumatology care: the average interval between the last pediatric rheumatology and first adult rheumatology visit was 9.9 months. Overall, 35% had not received a medical transfer summary report, more than 40% were dissatisfied with preparation for transfer, and approximately 1 in 5 participants reported relevant depressive symptoms.
conclusionRelevant discrepancies remain between recommendations for structured transitional care and actual care delivery. Disease-related knowledge appears to be a central factor for continuous follow-up in rheumatology. The findings underline the importance of early patient education and better integration of support services.
Indexed as
Identifiers
42853413What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.