ArticlePediatric transplantation2026
Information Seeking and Engagement on Social Media Among Pediatric Solid Organ Transplant Recipients and Their Families.
Article in Pediatric transplantation, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
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Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
backgroundSocial media is widely used among adolescents and offers unique opportunities to support children with chronic illnesses. However, little is known about how pediatric solid organ transplant (SOT) recipients and their families engage with these platforms. The objectives of this study are to characterize how this population seeks and shares information and engages with other pediatric SOT recipients and their families or general members on a transplant-specific online group.
methodsWe conducted a comprehensive search of the Reddit group, r/transplant. Publicly available posts and comments were included if they contained a self-identification as a pediatric SOT recipient (0-24 years old) or a family member. An inductive content analysis was performed to identify key topics. Self-disclosed demographic information was used to explore differences in discussion topics and engagement.
resultsA total of 357 posts and 5827 comments met inclusion criteria. Users most commonly discussed medical symptoms, medication, social support, healthcare experiences, and post-transplant recovery. Family members predominantly focused on medical issues, while recipients addressed a broader range of topics. Topics users engaged with varied by time since transplant: recipients 0-4 years post-transplant frequently discussed emotional and medical challenges, while those 5+ years post-transplant posted more about celebrating milestones.
conclusionsPediatric SOT recipients and their families use social media to seek and share information. Engagement patterns differ between recipients and their family members and across years post-transplant, suggesting the potential for tailored online interventions to support evolving needs across the transplant journey.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.