ArticleScandinavian journal of caring sciences2026
The Patient Concerns Inventory-Head and Neck (PCI-HN): Swedish Translation and Cultural Adaptation.
Article in Scandinavian journal of caring sciences, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
introductionThe Patient Concerns Inventory-Head and Neck (PCI-HN) is an item prompt list used in clinical settings to help patients with head and neck cancer (HNC) and their families address diagnosis, treatment, recovery and well-being issues. The PCI-HN has two versions: PCI-HN AD (after diagnosis) and PCI-HN PT (post-treatment). Today, no Swedish HNC-specific prompt list exists.
aimTo translate and culturally adapt the two PCI-HN into Swedish, ensuring conceptual, semantic and operational equivalence with the original English versions.
methodsThe 10 steps suggested by the International Society for Health Economics and Outcomes Research (ISPOR) were followed. The two PCI-HN were forward- and back-translated; review by the research group reached consensus on translated versions. Patients and healthcare professionals evaluated the translated versions in three phases. After each phase, corrections were made and new versions were tested. Phase A involved a focus group interview with a national multi-disciplinary team of healthcare professionals. Phase B included individual patient interviews. In phases A and B, the participants considered the understandability and relevance of each item in the PCI-HN. In phase C, healthcare professionals rated perceived relevance on a questionnaire (content validity). After the research group had agreed on final versions, the PCI-HN was reviewed by a proofreader.
resultsTen healthcare professionals (Phase A), 10 patients (Phase B) and 10 healthcare professionals (Phase C) participated. Adaptations were made to PCI-HN AD and PCI-HN PT to improve cultural, linguistic, and clarity aspects in response to the results. Content validity for the PCI-HN was excellent.
conclusionA translated and culturally adapted version of the PCI-HN is now available in Swedish. Patients and healthcare professionals highlighted its usefulness. The PCI-HN can now be implemented into the Swedish healthcare system to support patients and their families in raising issues related to the disease and treatment, and during the post-treatment period.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.