Evidence map›Paper›PMID 42841442›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2026

Nothing About Us Without Us: Principles for Lived Experience-Informed Psycho-Oncology Education and Training.

Darren Haywood, Sue Woodall, Annika Hegde, Jai Carmichael, Evan Dauer, Alexia Samiotis, Nicolas H Hart

Abstract readEditorial
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Darren HaywoodHuman Performance Research Centre, School of Human Performance, Rehabilitation and Population Health, INSIGHT Research Institute, Faculty of Health, University of Technology Sydney (UTS), Sydney, New South Wales, Australia.ORCID https://orcid.org/0000-0002-9317-4135
Sue WoodallLiveWorkCancer, Sydney, New South Wales, Australia.
Annika HegdeHuman Performance Research Centre, School of Human Performance, Rehabilitation and Population Health, INSIGHT Research Institute, Faculty of Health, University of Technology Sydney (UTS), Sydney, New South Wales, Australia.ORCID https://orcid.org/0009-0000-5860-0496
Jai CarmichaelHuman Performance Research Centre, School of Human Performance, Rehabilitation and Population Health, INSIGHT Research Institute, Faculty of Health, University of Technology Sydney (UTS), Sydney, New South Wales, Australia.
Evan DauerHuman Performance Research Centre, School of Human Performance, Rehabilitation and Population Health, INSIGHT Research Institute, Faculty of Health, University of Technology Sydney (UTS), Sydney, New South Wales, Australia.
Alexia SamiotisHuman Performance Research Centre, School of Human Performance, Rehabilitation and Population Health, INSIGHT Research Institute, Faculty of Health, University of Technology Sydney (UTS), Sydney, New South Wales, Australia.
Nicolas H HartHuman Performance Research Centre, School of Human Performance, Rehabilitation and Population Health, INSIGHT Research Institute, Faculty of Health, University of Technology Sydney (UTS), Sydney, New South Wales, Australia.ORCID https://orcid.org/0000-0003-2794-0193

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Lived experience is increasingly recognised as an essential source of expertise in healthcare research, service design, policy and quality improvement. In psycho-oncology, consumer involvement is now widely encouraged in research and service development; however comparatively little attention has been paid to the role of lived experience in educating and training the psycho-oncology workforce. We argue that involving people with lived experience should become a minimum requirement in developing, delivering, and evaluating psycho-oncology education and training. Given that psycho-oncology is fundamentally concerned with understanding and responding to the lived experience of cancer consumer involvement in education and training must be expected. To support meaningful implementation, we provide Principles for Lived Experience-Informed Psycho-Oncology Education and Training: representation, partnership, support, and accountability. Embedding lived experience expertise throughout psycho-oncology workforce development will strengthen the relevance, authenticity, and person-centredness of future education and training initiatives and may improve consumer outcomes.

Indexed as

Psycho-OncologyHumansNeoplasmsco‐designconsumer involvementhealth professional educationlived experiencepatient partnershippsycho‐oncologyworkforce development

Identifiers

PMID42841442
PMCPMC13643935

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.