ArticleHealth expectations : an international journal of public participation in health care and health policy2026
Nothing About Us Without Us: Principles for Lived Experience-Informed Psycho-Oncology Education and Training.
Article in Health expectations : an international journal of public participation in health care and health policy, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Authors and funding
7 authors.
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Abstract
Lived experience is increasingly recognised as an essential source of expertise in healthcare research, service design, policy and quality improvement. In psycho-oncology, consumer involvement is now widely encouraged in research and service development; however comparatively little attention has been paid to the role of lived experience in educating and training the psycho-oncology workforce. We argue that involving people with lived experience should become a minimum requirement in developing, delivering, and evaluating psycho-oncology education and training. Given that psycho-oncology is fundamentally concerned with understanding and responding to the lived experience of cancer consumer involvement in education and training must be expected. To support meaningful implementation, we provide Principles for Lived Experience-Informed Psycho-Oncology Education and Training: representation, partnership, support, and accountability. Embedding lived experience expertise throughout psycho-oncology workforce development will strengthen the relevance, authenticity, and person-centredness of future education and training initiatives and may improve consumer outcomes.
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