Evidence map›Paper›PMID 42834423›Full record

ArticleResearch involvement and engagement2026

From Youth Advisory Boards to subject matter research consultants: transforming youth participation in research advising and practice.

Rahim Z Miller, Zoë Njemanze, Miles C Perry, Adrian Y Williams, Judah Dean, Anderson Schlupp, Kathryn E Muessig, Lisa B Hightow-Weidman

Abstract readLetter
In one paragraph

Article in Research involvement and engagement, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Rahim Z Miller *Institute on Digital Health and Innovation, College of Nursing, Florida State University, Tallahassee, 32301, USA. rzm23@fsu.edu.ORCID http://orcid.org/0009-0006-6995-1543
Zoë Njemanze *Institute on Digital Health and Innovation, College of Nursing, Florida State University, Tallahassee, 32301, USA.ORCID http://orcid.org/0009-0006-0094-8434
Miles C Perry *Institute on Digital Health and Innovation, College of Nursing, Florida State University, Tallahassee, 32301, USA.
Adrian Y Williams *Institute on Digital Health and Innovation, College of Nursing, Florida State University, Tallahassee, 32301, USA. ayw22b@fsu.edu.
Judah DeanInstitute on Digital Health and Innovation, College of Nursing, Florida State University, Tallahassee, 32301, USA.
Anderson SchluppInstitute on Digital Health and Innovation, College of Nursing, Florida State University, Tallahassee, 32301, USA.
Kathryn E MuessigInstitute on Digital Health and Innovation, College of Nursing, Florida State University, Tallahassee, 32301, USA.ORCID http://orcid.org/0000-0002-8522-3240
Lisa B Hightow-WeidmanInstitute on Digital Health and Innovation, College of Nursing, Florida State University, Tallahassee, 32301, USA. lhightowweidman@fsu.edu.

Funding

SDMC; Statistical Data Mgmt CoreUM2HD111102 · NICHD · FLORIDA STATE UNIVERSITY · PI Lisa B Hightow-Weidman, Sybil Hosek · 2023 to 2026
$49.7M
NICHD NIH HHS UM2 HD111102NIH HHS UM2HD111102
6 · The paper itself

Abstract

backgroundYouth Advisory Boards and Community Advisory Boards are widely used to promote public involvement in research involving adolescents and young adults. These structures can improve the relevance, acceptability, and ethical grounding of research; however, advisory models often remain constrained by structural limitations, including inconsistent or inadequate compensation models, limited decision-making authority, grant-dependent instability, and late-stage engagement. These constraints may unintentionally position youth as episodic consultants rather than sustained research partners. MAIN BODY: This commentary describes the development of the Subject Matter Research Consultant (SMRC) model at the Institute on Digital Health and Innovation (IDHI), a formalized youth-engagement structure designed to move beyond traditional advisory-board participation. Emerging from earlier youth advisory and research consultant efforts, and formalized following IDHI's establishment in 2022, the SMRC model positions youth as part-time employees embedded across the research lifecycle. Core components of the model include paid employment, structured training and mentorship, centralized coordination, and meaningful involvement in research activities from study design through dissemination. Early implementation feedback suggests that SMRCs perceive the role as beneficial to their academic and professional development, with reported benefits including increased research skills, expanded professional networks, greater confidence contributing to research teams, and increased interest in health-related careers.

conclusionThe SMRC model illustrates how institutional investment in youth engagement can transform youth participation from episodic consultation into compensated, capacity-building research partnership. By formalizing youth roles through employment and sustained integration across projects, this model offers a practical framework for strengthening youth-engaged research systems. Continued evaluation is needed to assess scalability, funding sustainability, retention, and the model's impact on research quality, community trust, and health outcomes.

Indexed as

AdolescentCapacity buildingCommunity-based Participatory ResearchCompensationYoung adultYouth advisory boardsYouth co-researchersYouth engagement

Identifiers

PMID42834423
PMCPMC13637214

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.