Evidence map›Paper›PMID 42828508›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2026

Integrating a Lived Experience Position Into an Adult Survivors Program in Health: A Co-Reflection of Lived Experience, Clinical and Academic Perspectives.

Charlene Hurwitz, Elizabeth May, Maya Hayden, Katie McCarthy, Sophie Isobel

Abstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Charlene HurwitzNorthern Sydney Local Health District, Sydney, Australia.
Elizabeth MayNorthern Sydney Local Health District, Sydney, Australia.
Maya HaydenNorthern Sydney Local Health District, Sydney, Australia.
Katie McCarthyThe University of Sydney, Sydney, Australia.
Sophie IsobelThe University of Sydney, Sydney, Australia.ORCID https://orcid.org/0000-0002-1027-5847

Funding

Northern Sydney Local Health District
6 · The paper itself

Abstract

backgroundIntegrating lived experience roles into health services is increasingly recognised as key for effective service delivery. The Adult Survivors Program (ASP) has been established to support adult survivors of childhood sexual abuse, a population with complex health needs and historical mistrust of services. This paper explores the implementation of a dedicated Lived Experience position within ASP.

aimTo critically reflect on the process of establishing a Lived Experience of child sexual abuse role in a Violence, Abuse and Neglect health service, and identify lessons for workforce development.

methodsA dialogical co-reflection approach was used, involving a Lived Experience worker, senior clinician, clinical coordinator, and two researchers. Over 6 months, fortnightly reflective sessions were conducted. Individual written reflections are presented to form a shared narrative of the experience of implementation.

resultsThe narrative highlights the transformative potential of Lived Experience roles in VAN, challenges of visibility and stigma, and the need for organisational readiness. Establishing trust, safety, and shared values was critical. Structural issues such as pay parity, scope clarity, and emotional load were identified as significant considerations. The Lived Experience role enhanced: survivor-informed practice, disrupted hierarchical norms, and fostered cultural change, but also highlighted the importance of relational and systemic support.

conclusionEmbedding Lived Experience roles in health services offers opportunities for systemic reform and improved survivor engagement. Success depends on organisational commitment, flexible role design, reflective supervision, and sustainable resourcing. Findings inform policy and practice for integrating Lived Experience positions across health systems.

Indexed as

Adult Survivors of Child AbuseSurvivorsAdultChildCognitive ReflectionHumansadult survivorshealth servicesimplementationlived experience: child sexual abusepeer workreflection

Identifiers

PMID42828508
PMCPMC13633700

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.