Evidence map›Paper›PMID 42807587›Full record

ArticleClinical and public health guidelines2026

The Guidelines International Network Public Toolkit: Supporting Guideline Developers to Implement Best-Practice for Patient and Public Involvement.

Sarah Scott, Anneliese Synnot, Karen Graham, Lyubov Lytvyn, Dawid Pieper, Mark Rasburn, GIN Public Working Group

Abstract read
In one paragraph

Article in Clinical and public health guidelines, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Sarah ScottNational Institute for Health and Care Excellence (NICE) Manchester UK.ORCID https://orcid.org/0000-0002-8168-7064
Anneliese SynnotSchool of Public Health and Preventive Medicine Monash University Melbourne Australia.ORCID https://orcid.org/0000-0002-4008-4208
Karen GrahamScottish Intercollegiate Guidelines Network (SIGN) Edinburgh UK.ORCID https://orcid.org/0009-0003-2542-6278
Lyubov LytvynDepartment of Health Research Methods, Evidence, and Impact McMaster University Hamilton Ontario Canada.ORCID https://orcid.org/0000-0003-4425-2982
Dawid PieperBrandenburg Medical School (Theodor Fontane), Institute for Health Services and Health System Research, Faculty of Health Sciences Brandenburg Rüdersdorf Germany.ORCID https://orcid.org/0000-0002-0715-5182
Mark RasburnNational Institute for Health and Care Excellence (NICE) Manchester UK.ORCID https://orcid.org/0000-0002-7997-0127
GIN Public Working Group

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Patient and public involvement (PPI) is increasingly recognised as essential to the development of trustworthy and relevant clinical guidelines. However, guideline developers face persistent challenges in implementing best-practice PPI, including developing an appropriate PPI strategy, recruiting and supporting patients, and including diverse perspectives. The Guidelines International Network (GIN) Public Working Group developed the GIN Public Toolkit to address these challenges and support meaningful involvement across the guideline development lifecycle. This commentary outlines the Toolkit's background, purpose, structure, global impact and future directions. Freely available online, the Toolkit provides practical guidance and case examples based on the experiences of guideline developers around the world. Since its launch in 2015, the Toolkit has evolved to include 10 chapters delivered via dual-format: e-print and a website. Website analytics and citation data indicate the Toolkit's growing global reach, supported by the ongoing chapter translations, training and dissemination activities. The Toolkit's vision is to remain a living resource that is shaped by collaboration and is responsive to guideline developer's needs. Future directions include increasing the Toolkit's accessibility through further translations, refining citation practices and targeted promotion and dissemination strategies. The GIN Public Toolkit continues to build global capacity for meaningful PPI in guideline development.

Indexed as

GIN Public Toolkitguideline developmentguideline qualitypatient and public involvementstakeholder engagement

Identifiers

PMID42807587
PMCPMC13618555

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.