Evidence map›Paper›PMID 42806370›Full record

ArticleNeurological research and practice2026

Telemedical communication patterns in myasthenia gravis in a remote monitoring study.

Meret Herdick, Sophie Lehnerer, Maximilian Mönch, Lea Gerischer, Haoqi Sun, Pushpa Narayanaswami, Andreas Meisel, Maike Stein

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Article in Neurological research and practice, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

8 authors.

Meret Herdick *Department of Neurology with Experimental Neurology, Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Charitéplatz 1, 10117, Berlin, Germany.
Sophie Lehnerer *Department of Neurology with Experimental Neurology, Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Charitéplatz 1, 10117, Berlin, Germany.
Maximilian MönchInstitute of Biometry and Clinical Epidemiology, Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.
Lea GerischerDepartment of Neurology with Experimental Neurology, Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Charitéplatz 1, 10117, Berlin, Germany.
Haoqi SunDepartment of Neurology, Beth Israel Deaconess Medical Center, Harvard Medical, School, Boston, MA, USA.
Pushpa NarayanaswamiDepartment of Neurology, Beth Israel Deaconess Medical Center, Harvard Medical, School, Boston, MA, USA.
Andreas MeiselDepartment of Neurology with Experimental Neurology, Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Charitéplatz 1, 10117, Berlin, Germany.
Maike SteinDepartment of Neurology with Experimental Neurology, Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Charitéplatz 1, 10117, Berlin, Germany. maike.stein@charite.de.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeMyasthenia gravis (MG) is a rare neuromuscular disease. In-person appointments in specialized centers are not readily available, especially on short notice. The purpose of this study was to analyze patient-specialist communication through a telemedical platform.

methodsIn a randomized controlled study 45 MG patients were observed over three months. The intervention group (N = 30) was monitored via a mobile application ('app') that enabled chat function and assessed MG -specific outcome measures and data from external devices. We quantitatively evaluated communication patterns for patients and specialists from the chat. Controls (N = 15) received standard of care. Perceived MG specialist accessibility and contact with physicians outside the study team regarding MG-related issues was assessed in both groups.

findingsIn total, MG specialists were contacted a median of six times per patient via the chat, most commonly regarding medical issues (151, 54.5%), followed by technical (70, 25.3%), organizational (53, 19.1%), and other (3, 1.1%) topics. Specialists initiated contact a median of eight times per patient, most frequently addressing medical concerns (190, 49.4%), 38.4% of which were recommendations for medication changes. Specialists also addressed technical (154, 40.0%), organizational (36, 9.4%) and other (5, 1.3%) issues. Contacts with physicians outside the study team did not differ between groups. Perceived specialist accessibility was rated higher with telemedical support by the intervention group.

conclusionMG patients have a notable demand for timely advice especially concerning treatment recommendations. Future studies should evaluate the potential of telemedical solutions to prevent worsening of symptoms.

trial registrationThe study was registered under DRKS00029907 on August 19, 2022.

Indexed as

CommunicationMyasthenia gravisPROMsRemote monitoringTelemedicine

Identifiers

PMID42806370
PMCPMC13617854

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.