Evidence map›Paper›PMID 42805658›Full record

ArticleBMJ open2026

'You're still the same person, but you're just seeing a bit less': a qualitative study of the impact of vision impairment on mental well-being in children and young people with inherited eye disease in England.

Rachael F Canavan, Marc S Tibber, Ethan R Tailor, Tessa M Dekker, Michel Michaelides, Ngozi Oluonye, Dayyanah Sumodhee, Michael D Crossland

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Article in BMJ open, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

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3 · Its place in the literature

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No citing paper in PubMed yet.

4 · The record

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5 · Who and what money

Authors and funding

8 authors.

Rachael F CanavanUCL Institute of Ophthalmology, London, UK.
Marc S TibberResearch Department of Clinical, Educational and Health Psychology, University College London, London, UK.
Ethan R TailorEye-Young Persons Advisory Group, NIHR Moorfields Biomedical Research Centre, London, UK.
Tessa M DekkerUCL Institute of Ophthalmology, London, UK.
Michel MichaelidesUCL Institute of Ophthalmology, London, UK.
Ngozi OluonyeMoorfields Eye Hospital NHS Foundation Trust, London, UK.
Dayyanah SumodheeUCL Institute of Ophthalmology, London, UK.
Michael D CrosslandUCL Institute of Ophthalmology, London, UK m.crossland@ucl.ac.uk.ORCID http://orcid.org/0000-0001-6833-6043

Funding

Wellcome Trust
6 · The paper itself

Abstract

objectivesTo explore the influence of vision impairment (VI) on mental wellbeing in children and young people (CYP) with inherited macular disease and experiences perceived to enhance and limit their wellbeing.

designQualitative semi-structured interviews with children and young people with vision impairment and parents/carers of young people with VI. Interviews were recorded, transcribed and analysed by two researchers, working independently, using reflexive thematic analysis.

settingLow vision and ophthalmology clinics in England.

participantsSix young people aged 13-18 years with VI caused by inherited macular disease and 12 parents of young people with VI caused by inherited macular disease.

resultsFour overarching themes were developed: (1)

conclusionsVision impairment has emotional, social and systemic consequences. Experiences perceived to influence mental wellbeing included acceptance of vision loss, functional adaptation, self-efficacy and effects of social stigma and discrimination.

Indexed as

Macular DegenerationMental HealthVision DisordersAdolescentEnglandFemaleHumansInterviews as TopicMaleParentsPsychological Well-BeingQualitative ResearchMENTAL HEALTHOPHTHALMOLOGYQUALITATIVE RESEARCH

Identifiers

PMID42805658
PMCPMC13629961

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