ArticleNutrients2026
Nutritional Status and Caregiver Knowledge in Pediatric Cystic Fibrosis Management.
Article in Nutrients, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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5 authors.
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Abstract
introductionCystic fibrosis (CF) is a rare, life-limiting genetic disorder characterized by abnormally thick mucus secretions that obstruct the respiratory, gastrointestinal, and reproductive tracts. Globally, CF affects an estimated 70,000 to 100,000 individuals. This study investigated nutritional awareness and dietary management among caregivers of pediatric CF patients. Specifically, it evaluated parental nutritional knowledge, caregiving behaviors, and patients' actual nutrient intake and diet quality relative to established clinical guidelines.
methodsA cross-sectional study was conducted with a representative sample of 50 parents and their children with CF (aged 4-18 years) receiving specialized care at Caritas Baby Hospital in Bethlehem, Palestine. Data collection utilized a comprehensive parental questionnaire alongside a 3-day food diary completed by participants. Objective clinical status and biochemical markers were extracted directly from patients' medical records. CF-specific recommendations were used where available, and general pediatric reference values were used otherwise.
resultsA significant disparity (
conclusionThe high prevalence of underweight status and micronutrient deficiencies highlights a critical need for targeted nutritional education and clinical counseling programs. Enhancing awareness among patients and parents is essential to correct dietary deficits, optimize growth, and improve long-term health outcomes.
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