Evidence map›Paper›PMID 42794252›Full record

ReviewChildren (Basel, Switzerland)2026

Mapping Randomized Controlled Trials of Family- and Community-Centered Healthcare Interventions for Pediatric Asthma, Type 1 Diabetes, or Juvenile Idiopathic Arthritis-A Scoping Review.

Svetlana Solgaard Nielsen, Alessio Bricca, Stavros Orologas, Ann-Marie Malby Schoos, Anna-Helene Bohr, Kija Lin Østergaard, Julie Mondahl, Sofie Ahlgreen Gram, Dan Grabowski, Fatma Demircioglu Bilgin and 9 more

Abstract readReview
In one paragraph

Review in Children (Basel, Switzerland), 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

19 authors.

Svetlana Solgaard NielsenThe Research and Implementation Unit PROgrez, Department of Physiotherapy and Occupational Therapy, Central and West Zealand Hospital, 4200 Slagelse, Denmark.ORCID 0000-0002-3694-4236
Alessio BriccaCenter for Muscle and Joint Health, Department of Sports Science and Clinical Biomechanics, University of Southern Denmark, 5230 Odense, Denmark.ORCID 0000-0001-9717-918X
Stavros OrologasDepartment of Health Sciences, European University Cyprus, Nicosia 1516, Cyprus.ORCID 0009-0003-7518-1897
Ann-Marie Malby SchoosDepartment of Pediatrics, Central and Western Zealand Hospital, 4200 Slagelse, Denmark.ORCID 0000-0002-5827-0885
Anna-Helene BohrDepartment of Pediatrics, Central and Western Zealand Hospital, 4200 Slagelse, Denmark.
Kija Lin ØstergaardThe Research and Implementation Unit PROgrez, Department of Physiotherapy and Occupational Therapy, Central and West Zealand Hospital, 4200 Slagelse, Denmark.ORCID 0000-0001-8211-0999
Julie MondahlThe Research and Implementation Unit PROgrez, Department of Physiotherapy and Occupational Therapy, Central and West Zealand Hospital, 4200 Slagelse, Denmark.ORCID 0000-0003-4268-0721
Sofie Ahlgreen GramSangens Hus (The House of Song), 7400 Herning, Denmark.ORCID 0009-0006-2095-732X
Dan GrabowskiCopenhagen University Hospital, Steno Diabetes Center Copenhagen, Department of Prevention, Health Promotion and Community Care, 2730 Herlev, Denmark.ORCID 0000-0002-4323-2974
Fatma Demircioglu BilginDepartment of Gynecology and Obstetrics, Odense University Hospital (OUH), 5000 Odense, Denmark.
Marie Sofie Oxlund HoppeResearch Unit of General Practice, 8000 Aarhus, Denmark.
Tine Petz RasmussenResearch Unit of General Practice, 8000 Aarhus, Denmark.ORCID 0009-0004-4936-7644
Charlotte SimonÿThe Research and Implementation Unit PROgrez, Department of Physiotherapy and Occupational Therapy, Central and West Zealand Hospital, 4200 Slagelse, Denmark.ORCID 0000-0003-1189-2967
Alexander LuijkCentre for Health Research, Zealand University Hospital, Nykøbing F, 4000 Roskilde, Denmark.ORCID 0009-0005-1851-4370
Line Nørgaard RemmenResearch Unit of General Practice, 8000 Aarhus, Denmark.ORCID 0000-0003-0049-8585
Henrik HallasDepartment of Pediatrics, Central and Western Zealand Hospital, 4200 Slagelse, Denmark.
Louisa MittetResearch Unit of General Practice, 8000 Aarhus, Denmark.ORCID 0009-0007-1192-5593
Mette Tækker JensenResearch Unit of General Practice, 8000 Aarhus, Denmark.
Jeanette Reffstrup ChristensenResearch Unit of General Practice, 8000 Aarhus, Denmark.ORCID 0000-0002-2412-5989

Funding

Næstved-Slagelse-Ringsted Hospitals' Local Research Fund A2125Region Zealand Exercise FirstResearch Unit for General Practice 160-100380Steno Diabetes Center Zealand A47
6 · The paper itself

Abstract

backgroundFamily and community are key support sources for children and adolescents with chronic illnesses. This study aimed to map the characteristics of family- and community-centered interventions for pediatric chronic somatic disease.

methodsThis scoping review followed the Arksey and O'Malley guidance. Through a systematic search in Medline (PubMed), EMBASE, PsycINFO, Cochrane, and CINAHL, free web sources, the gray literature, and citations, we identified publications of randomized controlled trials evaluating family- and community-centered interventions for children aged 0-17 years with asthma, type 1 diabetes, or juvenile idiopathic arthritis. Two or more reviewers independently conducted screening, verification of machine-assisted data extraction, risk-of-bias assessment, and narrative synthesis.

resultsOf 7285 items identified, we included 76 publications on 71 interventions comprising 16,342 participants (median n = 157; IQR 81-303; range 12-1316) with a median age of 9 (range 0-19) years. Interventions incorporating educational, psychosocial, and care-coordination elements targeted asthma (68%), type 1 diabetes (29%), and juvenile idiopathic arthritis (3%) that had lasted ≤6 months (63%) and were delivered in person (83%) by healthcare professionals (62%). Primary outcomes included symptom burden (44%), coping with the disease (24%), disease control (20%), activity participation, child psychosocial functioning, medication or healthcare use (18% each), or child quality of life (17%). Usual care (59%) and other treatment (31%) were frequent comparators.

conclusionsMost interventions were short-term, healthcare professional-led multicomponent programs compared with usual care. Primary outcomes targeted symptom management and disease control. Mixed diagnoses, peer support, family activities, and non-professional delivery were uncommon. This study identified gaps in diagnosis coverage and the need for additional high-quality studies.

Indexed as

adolescentschildrencommunityfamily health promotion

Identifiers

PMID42794252
PMCPMC13605961

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.