ArticleBrain sciences2026
Care Partner Perceptions of Conversation Difficulties, Strategy Use, and Psychosocial Impacts in Primary Progressive Aphasia: A Descriptive Study Using the PCI-DAT.
Article in Brain sciences, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
Abstract
backgroundPrimary progressive aphasia (PPA) disrupts communication and increases caregiving burden. Despite their critical role in supporting communication, objective data characterizing communication partners' perceptions of conversation difficulties, strategies, and psychosocial impacts across PPA subtypes remain scarce. This study characterizes these experiences using the Perception of Conversation Index-Dementia of the Alzheimer's Type (PCI-DAT) in a well-characterized PPA sample.
methodsBaseline PCI-DAT data from 95 communication partners of individuals with PPA enrolled in the Communication Bridge-2 (CB2) randomized controlled trial were analyzed. Descriptive analyses examined item- and subscale-level responses across five PCI-DAT subscales. Kruskal-Wallis tests were used to compare subscale total scores across agrammatic (PPA-G, n = 26), logopenic (PPA-L, n = 43), and semantic (PPA-S, n = 26) PPA subtypes.
resultsCommunication partners endorsed a wide range of conversation difficulties, with using the correct word and pausing/searching for words being the most frequently and severely rated items. Across subtypes, partners reported frequent use and perceived helpfulness of compensatory actions, both their own and those used by the person with PPA. PPA-S care partners reported directionally higher emotional burden (Subscale 4: M = 24.46, SD = 10.96) and practical challenges (Subscale 5: M = 19.27, SD = 11.61). No statistically significant between-subtype differences emerged for any subscale (all
conclusionsThese findings characterize the breadth and heterogeneity of communication partner-perceived conversation difficulties and their psychosocial impacts in mild-to-moderate PPA. Substantial within-subtype variability supports individualized assessment and intervention planning.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.