ArticleJournal of autism and developmental disorders2026
Exploring the Perspectives of Siblings of Autistic Adults With Distressing Behavior: Perceptions of Positive and Negative Impacts.
Article in Journal of autism and developmental disorders, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeSiblings of individuals with disabilities, including autism, often plan to assume future caregiving roles. Yet, most extant research relies on convenience samples wherein the autistic brother/sister does not have distressing behaviors. In the limited research about siblings of individuals with distressing behaviors, siblings often report negative and distant sibling relationships. To discern the perceived effects of distressing behavior on siblings and its impact on future caregiving roles, it is critical to explore the perspectives of adult siblings of autistic individuals with distressing behaviors.
methodsWe conducted individual interviews with sixteen siblings of autistic adults with distressing behaviors. Using Trauma Exposure Theory and the Hidden Talents Framework, we explored their perspectives including positive, negative, and caregiving effects.
resultsThere was a nuanced effect of having a sibling with distressing behavior with participants reporting some benefits (e.g., increased resilience) and some negative impacts (e.g., worse mental health). Further, participants reported effects on their life choices (e.g., decisions about dating, marriage, and family planning) that conflict with extant research.
conclusionImplications for research and practice are discussed.
Indexed as
Identifiers
42789000What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.