Evidence map›Paper›PMID 42788705›Full record

ArticleJournal of evaluation in clinical practice2026

Exploring Awareness of and Self-Reported Adherence to Neuromuscular Clinical Practice Guidelines Among Australian and New Zealand Health Professionals: A Cross-Sectional Survey Study.

Rachel A Kennedy, Marlena Klaic, Gabrielle Donlevy, Kate Carroll, Paula Bray, Eppie M Yiu, Zoe E Davidson

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Article in Journal of evaluation in clinical practice, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

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1citing papers in PubMed
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1 · What the graph read from it

What it found

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2 · The registry

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3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

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4 · The record

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5 · Who and what money

Authors and funding

7 authors.

Rachel A KennedyRoyal Children's Hospital, Parkville, Victoria, Australia.
Marlena KlaicMelbourne School of Health Sciences, Faculty of Medicine, Dentistry and Health Sciences, The University of Melbourne, Melbourne, Victoria, Australia.
Gabrielle DonlevyThe University of Sydney School of Health Sciences, Faculty of Medicine and Health, The University of Sydney, Camperdown, New South Wales, Australia.
Kate CarrollRoyal Children's Hospital, Parkville, Victoria, Australia.ORCID 0000-0002-2519-3289
Paula BrayThe University of Sydney School of Health Sciences, Faculty of Medicine and Health, The University of Sydney, Camperdown, New South Wales, Australia.
Eppie M YiuRoyal Children's Hospital, Parkville, Victoria, Australia.ORCID 0000-0001-6704-8402
Zoe E DavidsonRoyal Children's Hospital, Parkville, Victoria, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

background and purposeThere is limited evidence describing awareness and adherence to clinical practice guidelines for neuromuscular disorders. This study aimed to assess awareness of and self-reported adherence to clinical practice guidelines for neuromuscular disorders among Australian and New Zealand health professionals.

methodsA cross-sectional survey of health professionals working with individuals with neuromuscular disorders was conducted to describe awareness of three neuromuscular guidelines. Self-reported adherence to recommendations for allied health assessments in Duchenne muscular dystrophy and exercise and physical activity in paediatric Charcot-Marie-Tooth was also assessed.

resultsSixty-four surveys were received; 50/64 (84%) worked in metropolitan areas, 44/64 (69%) were allied health professionals and 35/64 (55%) had less than 5 years' experience in neuromuscular disorders. Sixty participants provided responses about guideline awareness. Awareness was 67% (n = 40/60)-DMD diagnosis and management care considerations, 42% (n = 25/60)-Clinical practice guidelines for allied health and nursing assessment and management of Duchenne muscular dystrophy and 33% (n = 20/60)-Clinical practice guideline for the management of paediatric Charcot-Marie-Tooth disease. Those who were aware of the guidelines felt that they influenced their practice. Self-reported adherence to evidence-based assessments in Duchenne muscular dystrophy ranged from 24% (use of dynamometry) to 90% (not using skinfolds). Twenty-four (24/64; 38%) respondents managed paediatric Charcot-Marie-Tooth and most recommended exercise and physical activity for management of Charcot-Marie-Tooth-related impairments. DISCUSSION: This study provides insights into guideline self-reported adherence among Australian and New Zealand health professionals treating individuals with neuromuscular disorders. Targeted strategies to increase guideline awareness and adherence are vital to ensure standardised and equitable care in readiness for prospective disease-modifying therapies.

Indexed as

Guideline AdherenceHealth PersonnelNeuromuscular DiseasesPractice Guidelines as TopicAdultAustraliaCross-Sectional StudiesFemaleHealth Knowledge, Attitudes, PracticeHumansMaleMiddle AgedMuscular Dystrophy, DuchenneNew ZealandSelf ReportassessmentCharcot‐Marie‐Toothclinical guidelinesDuchenne muscular dystrophyexercisepaediatric

Identifiers

PMID42788705
PMCPMC13613995

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.