Evidence map›Paper›PMID 42787644›Full record

ReviewESMO real world data and digital oncology2026

Reporting of National Cancer Registry statistics in Europe: a scoping review.

B P Pang, K C W J Ebben, I Cara, A Duratović Konjević, G Geleijnse

Abstract readReview
In one paragraph

Review in ESMO real world data and digital oncology, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

B P PangDepartment of Research and Development, Netherlands Comprehensive Cancer Organisation (IKNL), Utrecht, The Netherlands.
K C W J EbbenDepartment of Research and Development, Netherlands Comprehensive Cancer Organisation (IKNL), Utrecht, The Netherlands.
I CaraDepartment of Research and Development, Netherlands Comprehensive Cancer Organisation (IKNL), Utrecht, The Netherlands.
A Duratović KonjevićSlovenian Cancer Registry, Institute of Oncology Ljubljana, Ljubljana, Slovenia.
G GeleijnseDepartment of Research and Development, Netherlands Comprehensive Cancer Organisation (IKNL), Utrecht, The Netherlands.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Population-based cancer registries (PBCRs) play an important role in national cancer control programs by providing data for cancer statistics. The European Network of Cancer Registries (ENCR) aims to promote the impact and use of European PBCRs and umbrella organizations (UOs). This study maps the reporting practices of European national PBCRs (NPBCRs) and UOs regarding the key statistical indicators: incidence, prevalence, and survival. Patients and methods: The ENCR Members Contact List and Google.com were used to identify websites of all NPBCRs and UOs, which were screened for sources of evidence (SoEs). Using a predefined protocol, the SoEs were assessed for the reporting of incidence, prevalence, and survival, as well as the timeliness of reporting. A scoring rubric was used to assess data accessibility. Results: Excluding microstates, at least one SoE was identified for 34 out of 45 European countries. In total, 60 SoEs containing nationwide statistics were found, mainly general cancer reports ( Conclusion: This study highlights the heterogeneity in the reporting, accessibility, and timeliness of cancer statistics across European NPBCRs and UOs. Improving harmonization and reporting practices could enhance the value of cancer registry data for cancer control.

Indexed as

cancer registrycancer statisticsdata communicationEuropetimeliness

Identifiers

PMID42787644
PMCPMC13602766

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.