Evidence map›Paper›PMID 42779468›Full record

Observational studyAustralasian journal on ageing2026

Informant Perspectives on the Quality of Life of Healthy Older People, and People With Dementia Living in the Community and Care Facilities.

Pascalle Bosboom, Hui Wen Quek, Amy Page, Kelly Banz, Osvaldo P Almeida, Leon Flicker, Nicola T Lautenschlager, Christopher Etherton-Beer

Abstract readObservational StudyComparative Study
PubMed Full text at PMC Publisher
In one paragraph

Observational study in Australasian journal on ageing, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Pascalle BosboomWestern Australia Centre for Health and Ageing, Medical School, The University of Western Australia, Perth, Western Australia, Australia.
Hui Wen QuekCentre for Optimisation of Medicines, School of Health and Clinical Sciences, The University of Western Australia, Perth, Western Australia, Australia.ORCID https://orcid.org/0000-0003-3851-179X
Amy PageCentre for Optimisation of Medicines, School of Health and Clinical Sciences, The University of Western Australia, Perth, Western Australia, Australia.ORCID https://orcid.org/0000-0002-2084-8469
Kelly BanzWestern Australia Centre for Health and Ageing, Medical School, The University of Western Australia, Perth, Western Australia, Australia.
Osvaldo P AlmeidaWestern Australia Centre for Health and Ageing, Medical School, The University of Western Australia, Perth, Western Australia, Australia.ORCID https://orcid.org/0000-0002-8689-6199
Leon FlickerWestern Australia Centre for Health and Ageing, Medical School, The University of Western Australia, Perth, Western Australia, Australia.ORCID https://orcid.org/0000-0002-3650-0475
Nicola T LautenschlagerDepartment of Psychiatry, The University of Melbourne, Melbourne, Victoria, Australia.ORCID https://orcid.org/0000-0003-4850-7794
Christopher Etherton-BeerWestern Australia Centre for Health and Ageing, Medical School, The University of Western Australia, Perth, Western Australia, Australia.ORCID https://orcid.org/0000-0001-5148-0188

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesQuality of life (QoL) ratings for people living with dementia appear to be influenced by several factors. This study examined how informant perspectives and place of residence influence agreement between self- and informant-rated QoL of people living with dementia.

methodsThis cross-sectional observational study included 74 healthy older controls, 80 community-dwelling people living with dementia and 351 residing in residential care facilities (RCFs), along with their informants. Quality of life was assessed using the Quality of Life in Alzheimer's Disease (QoL-AD) scale. Carers provided two ratings: (i) proxy (their estimate of the person's self-rating) and (ii) opinion (their own view of the person's QoL).

resultsIn the control group, self- and informant-rated QoL did not differ significantly. Among community-dwelling people living with dementia, self-rated QoL was higher than both proxy (mean difference 2.7, 95% CI 1.3-4.1) and opinion ratings (mean difference 5.3, 95% CI 3.8-6.8). Similarly, those in RCFs rated their QoL higher than informants. The mean difference between self and opinion rating was greater than the mean difference between self and proxy rating (7.2, 95% CI 6.0, 8.5 for opinion rating, and 5.1, 95% CI 3.8, 6.3 for proxy rating). Discrepancies were greater for people living with dementia residing in RCF than in the community.

conclusionsInformants tend to underestimate QoL in people living with dementia, particularly in residential care. Informant perspective and dementia severity may influence ratings. Researchers and service providers should consider both self- and informant perspectives when evaluating QoL in people living with dementia.

Indexed as

CaregiversDementiaIndependent LivingProxyQuality of LifeAgedAged, 80 and overAge FactorsAging in PlaceCase-Control StudiesCross-Sectional StudiesFemaleHumansMaleNursing Home Residentscaregiverscommunity supportdementiaquality of lifeself report

Identifiers

PMID42779468
PMCPMC13601966

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.