Evidence map›Paper›PMID 42773241›Full record

ArticleJournal of perinatology : official journal of the California Perinatal Association2026

Parental experiences of discharge preparation and preparedness after infants' hospitalization for surgically correctable congenital anomalies.

Adesola C Akinkuotu, Joy E Obayemi, Madelyn Johnson, Jordan Sharpe, Patricia Knoepp, Michael R Phillips, Scott Elton, William Goodnight, Sean E McLean, Darren A DeWalt

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Article in Journal of perinatology : official journal of the California Perinatal Association, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Adesola C AkinkuotuDepartment of Surgery, University of North Carolina School of Medicine, Chapel Hill, NC, USA. adesola_akinkuotu@med.unc.edu.ORCID http://orcid.org/0000-0002-1136-2707
Joy E ObayemiDepartment of Surgery, University of Michigan, Ann Arbor, MI, USA.ORCID http://orcid.org/0000-0002-1990-2392
Madelyn JohnsonDepartment of Surgery, University of North Carolina School of Medicine, Chapel Hill, NC, USA.ORCID http://orcid.org/0009-0007-6327-3064
Jordan SharpeDepartment of Surgery, University of North Carolina School of Medicine, Chapel Hill, NC, USA.
Patricia KnoeppCecil G. Sheps Center for Health Services Research, University of North Carolina School of Medicine, Chapel Hill, NC, USA.
Michael R PhillipsDepartment of Surgery, University of North Carolina School of Medicine, Chapel Hill, NC, USA.
Scott EltonDepartment of Neurosurgery, University of North Carolina School of Medicine, Chapel Hill, NC, USA.
William GoodnightDepartment of Obstetrics and Gynecology, University of North Carolina School of Medicine, Chapel Hill, NC, USA.
Sean E McLeanDepartment of Surgery, University of North Carolina School of Medicine, Chapel Hill, NC, USA.
Darren A DeWaltDepartment of Medicine, University of North Carolina School of Medicine, Chapel Hill, NC, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveTo explore parental experiences of pre-discharge education, discharge preparedness, and post-discharge support after infants' hospitalization for surgically correctable congenital anomalies (SCCAs). STUDY

designQualitative study using semi-structured interviews with English-speaking women whose pregnancies were associated with SCCAs from 2018-2023 and resulted in live birth and survival to discharge from a tertiary care children's hospital. Interviews were analyzed thematically.

resultsTwenty-two interviews were conducted. SCCAs included congenital diaphragmatic hernia (n = 8), congenital pulmonary airway malformations (n = 4), myelomeningocele (n = 5), gastroschisis (n = 4), or omphalocele (n = 1). Emergent themes were: (1) lack of consistency in pre-discharge education and preparation, (2) balancing anxiety and confidence, (3) parental need for multi-layered post-discharge support, and (4) parent-identified opportunities to strengthen discharge preparation and post-discharge support.

conclusionParents of infants with SCCAs receive variable pre-discharge education that may limit self-efficacy and heighten anxiety during the transition home. Interventions including standardized, structured discharge education and post-discharge support may improve parental preparedness and post-discharge confidence.

Identifiers

PMID42773241

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.