ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2026
Informational needs in vulvar cancer and precursor conditions: a social listening study.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeVulvar cancer and precursor conditions including vulvar intraepithelial neoplasia (VIN) impose substantial burden, yet patient information provision remains poorly evidenced. Stigma and taboo contribute to diagnostic delays of 6-11 months. This study used social listening to map the online information-seeking landscape of women with vulvar cancer and VIN, with the aim of informing phase-integrated supportive care strategies.
methodsQuestions were collected from six publicly accessible online platforms in the Netherlands, the UK, and the US (November 2025-January 2026), encompassing posts from 2008 onward. After screening 4859 posts, 619 questions were included. Data were analyzed using inductive qualitative content analysis with independent coding; reporting followed COREQ.
resultsSeven themes were identified: Causes, Early signs, Diagnostics, Treatments, After treatment, Long-term concerns, and Psychosocial impact. Early signs and After treatment each accounted for 19% of coded segments, and Diagnostics for 17%. Recognition uncertainty-difficulty interpreting bodily changes as normal, abnormal, or recurrence-related-was the most frequently expressed informational need, accounting for 20% of all coded segments across the Early signs, After treatment, and Long-term concerns themes, more than any single theme. After treatment, questions predominantly concerned wound complications and recovery expectations, including among preoperative women.
conclusionThis recognition uncertainty is the central unmet need across the patient journey, from pre-diagnostic symptom appraisal through survivorship. These findings support phase-integrated supportive care interventions: initiating symptom-related communication before diagnosis, structuring preoperative education around recovery and wound care, and developing visually supported materials. Proactive clinician-patient communication could reduce diagnostic delays and psychological burden.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.