Evidence map›Paper›PMID 42767753›Full record

ArticleBMJ open2026

Empowering youth with chronic conditions: enhancing sexual and reproductive health through evidence and engagement - protocol for a co-design approach.

Salima Meherali, Saba Nisa, Simone Lebeuf, Lisa Hartling, Janani Kassiri, Michael Khoury, Laura Kirkpatrick, Deborah Levy, Wendy V Norman, Kambiz Norozi and 4 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMJ open, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Salima MeheraliFaculty of Nursing, University of Alberta, Edmonton, Alberta, Canada meherali@ualberta.ca.ORCID http://orcid.org/0000-0002-8132-8600
Saba NisaFaculty of Nursing, University of Alberta, Edmonton, Alberta, Canada.
Simone LebeufDepartment of Pediatrics, University of Alberta Faculty of Medicine & Dentistry, Edmonton, Alberta, Canada.
Lisa HartlingDepartment of Pediatrics, University of Alberta Faculty of Medicine & Dentistry, Edmonton, Alberta, Canada.ORCID http://orcid.org/0000-0001-8341-3991
Janani KassiriDivision of Pediatric Neurology, Faculty of Medicine & Dentistry - Pediatrics Dept, University of Alberta, Edmonton, Alberta, Canada.
Michael KhouryDepartment of Pediatrics, University of Alberta Faculty of Medicine & Dentistry, Edmonton, Alberta, Canada.ORCID http://orcid.org/0000-0001-6112-6860
Laura KirkpatrickFaculty of Medicine, Departments of Pediatrics and Neurology, University of Pittsburgh, Pittsburgh, Pennsylvania, USA.
Deborah LevyFaculty of Medicine, University of Toronto, Toronto, Ontario, Canada.
Wendy V NormanFaculty of Medicine, Department of Family Practice, University of British Columbia, Vancouver, British Columbia, Canada.ORCID http://orcid.org/0000-0003-4340-7882
Kambiz NoroziDepartment of Pediatrics, Pediatric Cardiology, Western University, London, Ontario, Canada.
Shannon ScottJoanna Briggs Institute (JBI) University of Alberta Centre for Knowledge Mobilization, Edmonton, Alberta, Canada.ORCID http://orcid.org/0000-0002-2251-3742
Anam Shahil-FerozFaculty of Health Sciences, School of Nursing, Western University, London, Ontario, Canada.
Amanda SteimanFaculty of Medicine, Division of Pediatric Rheumatology, University of Toronto, Toronto, Ontario, Canada.ORCID http://orcid.org/0000-0002-5257-1441
Ashley VandermorrisFaculty of Medicine, Department of Pediatrics, University of Toronto, Toronto, Ontario, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionAdolescence and young adulthood (ages 15-24) are critical developmental periods that require comprehensive sexual and reproductive health (SRH) education. Youth with chronic conditions like epilepsy, congenital heart disease (CHD) and systemic lupus erythematosus (SLE) face unique SRH challenges, such as teratogenic medication risks and higher maternal mortality, yet often lack specialised counselling. A significant evidence gap exists in Canada regarding the SRH needs and access to care for this population. To address the SRH needs of youth with epilepsy, CHD and SLE, this project will apply community-based participatory research (CBPR) principles to meaningfully engage youth and co-design culturally relevant knowledge translation tools that enhance SRH information and care for these youth. METHODS AND ANALYSIS: This study employs a four-stage CBPR and integrated knowledge translation (iKT) approach. ETHICS AND DISSEMINATION: Ethical approval has been obtained from the University of Alberta Research Ethics Board (Pro00165408). Informed consent will be secured from all participants. Dissemination will include peer-reviewed publications, academic presentations, social media content (TikTok, Instagram) and a national Canadian conference. REGISTRATION DETAILS: The protocol for the scoping review is registered in the Open Science Framework (https://doi.org/10.17605/OSF.IO/5SWTY).

Indexed as

EmpowermentReproductive HealthSexual HealthAdolescentCanadaChronic DiseaseCommunity-Based Participatory ResearchEpilepsyFemaleHumansLupus Erythematosus, SystemicMaleQualitative ResearchResearch DesignScoping Reviews as TopicTranslational Research, BiomedicalChronic DiseaseHealthSexually Transmitted Disease

Identifiers

PMID42767753
PMCPMC13599948

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.