Evidence map›Paper›PMID 42758806›Full record

ArticlePloS one2026

The role of co-design and co-creation methodologies in research supporting older adults living with HIV: A scoping review.

Esther Su, Luxey Sirisegaram, Hardeep Singh, Andrew D Eaton, Sarah E P Munce, Paige Brown, Carolina Navas, Stuart McKinlay, Alice Zhabokritsky, Kristina M Kokorelias

Abstract readScoping Review
In one paragraph

Article in PloS one, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Esther SuDivision of Geriatric Medicine, Department of Medicine, Sinai Health System and University Health Network, Toronto, ON, Canada.ORCID https://orcid.org/0009-0000-5854-5028
Luxey SirisegaramDivision of Geriatric Medicine, Department of Medicine, Sinai Health System and University Health Network, Toronto, ON, Canada.
Hardeep SinghDepartment of Occupational Science & Occupational Therapy, Temerty Faculty of Medicine, University of Toronto, Toronto, ON, Canada.
Andrew D EatonFaculty of Social Work - Saskatoon Campus, University of Regina, Regina, SK, Canada.
Sarah E P MunceDepartment of Occupational Science & Occupational Therapy, Temerty Faculty of Medicine, University of Toronto, Toronto, ON, Canada.
Paige BrownDivision of Geriatric Medicine, Department of Medicine, Sinai Health System and University Health Network, Toronto, ON, Canada.
Carolina NavasDivision of Geriatric Medicine, Department of Medicine, Sinai Health System and University Health Network, Toronto, ON, Canada.ORCID https://orcid.org/0000-0003-4689-4612
Stuart McKinlayDivision of Geriatric Medicine, Department of Medicine, Sinai Health System and University Health Network, Toronto, ON, Canada.ORCID https://orcid.org/0000-0001-6460-9307
Alice ZhabokritskyInfectious Diseases, Department of Medicine, University Health Network, Toronto, ON, Canada.
Kristina M KokoreliasDivision of Geriatric Medicine, Department of Medicine, Sinai Health System and University Health Network, Toronto, ON, Canada.ORCID https://orcid.org/0000-0002-1277-472X

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionThis study aims to synthesize existing literature on co-design and co-creation methodologies that support older adults living with HIV and to identify opportunities and challenges for applying these approaches in geriatric HIV contexts.

methodsA protocol for this scoping review was published elsewhere; we also describe our methods below. The Joanna Briggs Institute (JBI) Manual for scoping reviews guided our approach, including database searching, title/abstract and full-text screening, data extraction, and analysis. We followed PRISMA recommendations for evidence screening and selection.

resultsOur search identified 2,734 records from databases and no articles from grey literature. Across included studies, we identified themes describing how co-design and co-creation are used with older adults living with HIV, along with persistent challenges in implementation. Co-designed digital interventions may be less accessible for older adults who have lower digital literacy or limited access to devices or internet, and participants often represent a subset of older adults who are more able to engage in workshops or interviews or who have lower health status. Advisory committee members emphasized the importance of diverse participation and attention to accessibility throughout the process.

conclusionsThis review synthesizes evidence on co-design and co-creation for older adults living with HIV and highlights implications for practice and future research participation and engagement in this population. Findings point to the need for clear processes, inclusive recruitment, and attention to digital access and support when implementing co-designed interventions in geriatric HIV care.

Indexed as

HIV InfectionsResearch DesignAgedHumans

Identifiers

PMID42758806
PMCPMC13588517

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.