Evidence map›Paper›PMID 42757321›Full record

ArticleInternational journal of population data science2026

Standardising Access to Sensitive Data with Machine-Actionable Access Conditions.

Lucas van der Meer, Ahmad Hesam, Jetze Touber, Ricarda Braukmann, Deborah Thorpe, Emilie Kraaikamp, Tom Emery

Abstract read
In one paragraph

Article in International journal of population data science, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Lucas van der MeerErasmus University Rotterdam, Burg. Oudlaan 50, 3062 PA, Rotterdam, the Netherlands.
Ahmad HesamSURF, Moreelsepark 48, 3511 EP, Utrecht, the Netherlands.
Jetze TouberDANS, Anna van Saksenlaan 51, 2593 HW, Den Haag, the Netherlands.
Ricarda BraukmannDANS, Anna van Saksenlaan 51, 2593 HW, Den Haag, the Netherlands.
Deborah ThorpeDANS, Anna van Saksenlaan 51, 2593 HW, Den Haag, the Netherlands.
Emilie KraaikampDANS, Anna van Saksenlaan 51, 2593 HW, Den Haag, the Netherlands.
Tom EmeryErasmus University Rotterdam, Burg. Oudlaan 50, 3062 PA, Rotterdam, the Netherlands.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Introduction: While many countries have invested heavily in secure technical infrastructures such as Trusted Research Environments (TREs), the rules that determine who may access which data, under what conditions, and for which purposes are still expressed primarily as natural language legal and administrative documents, with little or no accompanying machine-readable representation. This limits automation, interoperability, and scalability, particularly for research that spans multiple data holders. Objectives: This paper examines these challenges through the Dutch social science data landscape and presents a framework for standardising access governance using machine-actionable access conditions, with the aim of bridging the gap between secure technical environments and scalable access governance. Methods: Building on the Open Digital Rights Language (ODRL), we propose a library of reusable access condition templates and a Data Access Broker service. The framework was developed through iterative consultation with data holders in the Dutch SSH domain and draws on ongoing developments within the European Open Science Cloud (EOSC) and related data sharing initiatives. Results: We demonstrate that machine-actionable access conditions can operationalise legal and organisational oversight in a transparent, auditable, and interoperable way without replacing it. The proposed framework addresses key challenges identified in the Dutch context - including fragmentation, administrative burden, and inconsistent decision-making - and is applicable across European data infrastructures. Conclusions: The approach does not replace legal or organisational oversight, but operationalises it in a transparent, auditable, and interoperable way. While grounded in the Dutch context and the ODISSEI infrastructure, the challenges addressed are common across Europe. The paper presents a concrete implementation pathway supporting ongoing developments within EOSC and related data sharing initiatives.

Indexed as

Access to InformationComputer SecurityConfidentialityInformation DisseminationHumansNetherlandsdata access brokermachine-actionable access conditionsopen digital rights languageTrusted Research Environment

Identifiers

PMID42757321
PMCPMC13584987

What OpenQuestion holds

Textmetadata
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.