ArticlePsycho-oncology2026
Digital Support for Cancer Caregivers in Latin America: Identifying Needs and Co-Designing a Culturally Adapted Resource.
Article in Psycho-oncology, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
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Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
objectiveCancer caregivers in low- and middle-income countries face substantial psychosocial and practical burdens. In Latin America, caregivers provide essential support under resource constrained conditions. This study aimed to co-design a transferable digital resource for Spanish-speaking caregivers that reflects their support and information needs.
methodsA three-phase co-design study engaged caregivers, healthcare professionals, academics, and policymakers across Latin America including Colombia, Argentina, Mexico and Peru. Phase 1 involved a hybrid workshop with oncology professionals to identify and prioritise caregiver needs. Phase 2 included verification workshops with professionals and an online caregiver survey to refine content and delivery. Phase 3 used think-aloud workshops to evaluate and finalise the prototype.
resultsA total of 342 stakeholders contributed. Participants highlighted the need for accessible, structured support that addressed evolving caregiving needs. While information, practical support, and healthcare navigation were prioritised, participants also emphasised the importance of peer connection and maintaining opportunities for face-to-face engagement, positioning digital resources as a complement rather than a replacement for human support. Stakeholders highlighted the need for inclusive and accessible design, including simplified language, engaging multimedia content, caregiver narratives, and representation of diverse caregiving experiences. The resulting six-module prototype addressed the caregiver role, practical care and symptom support, navigating health and social care systems, palliative and end-of-life care, caregiver well-being, and locally adaptable supportive resources.
conclusionsThis co-designed resource provides a foundation for developing culturally responsive caregiver support across Latin America. By combining digital delivery with opportunities for social connection, inclusive design, and local adaptation, the resource addresses key needs while supporting future implementation within existing care systems.
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