Evidence map›Paper›PMID 42748175›Full record

ArticlePloS one2026

Communication barriers in perinatal care for autistic women: A qualitative study using the hermeneutic-dialectic circle in Brazil.

Aline Veras Morais Brilhante, Christina César Praça Brasil, Raimunda Magalhães da Silva, Marjan Askari, Luciana Andrade da Mota Sampaio, Jonas Loiola Gonçalves, Layane Sabóia, Lucas Alessandro Macedo Cruz, Helena Rodrigues Dias, Luciel Almeida Cavalcanti and 3 more

Abstract read
In one paragraph

Article in PloS one, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Aline Veras Morais BrilhanteDepartment of Women's, Children's and Adolescent Health, Faculty of Medicine, Federal University of Ceará (UFC), Fortaleza, Ceará, Brazil.ORCID https://orcid.org/0000-0002-3925-4898
Christina César Praça BrasilGraduate Program in Collective Health, University of Fortaleza (UNIFOR), Fortaleza, Ceará, Brazil.
Raimunda Magalhães da SilvaGraduate Program in Collective Health, University of Fortaleza (UNIFOR), Fortaleza, Ceará, Brazil.
Marjan AskariLeiden University Medical Center (LUMC), Leiden, South Holland, The Netherlands.
Luciana Andrade da Mota SampaioDepartment of Women's, Children's and Adolescent Health, Faculty of Medicine, Federal University of Ceará (UFC), Fortaleza, Ceará, Brazil.
Jonas Loiola GonçalvesDepartment of Neurology, School of Medicine, University of São Paulo, São Paulo, Brazil.ORCID https://orcid.org/0000-0003-1015-9173
Layane SabóiaDepartment of Women's, Children's and Adolescent Health, Faculty of Medicine, Federal University of Ceará (UFC), Fortaleza, Ceará, Brazil.
Lucas Alessandro Macedo CruzGraduate Program in Collective Health, University of Fortaleza (UNIFOR), Fortaleza, Ceará, Brazil.ORCID https://orcid.org/0000-0003-3733-455X
Helena Rodrigues DiasDepartment of Women's, Children's and Adolescent Health, Faculty of Medicine, Federal University of Ceará (UFC), Fortaleza, Ceará, Brazil.
Luciel Almeida CavalcantiGraduate Program in Collective Health, University of Fortaleza (UNIFOR), Fortaleza, Ceará, Brazil.
Maria Julya Albuquerque ParenteDepartment of Women's, Children's and Adolescent Health, Faculty of Medicine, Federal University of Ceará (UFC), Fortaleza, Ceará, Brazil.ORCID https://orcid.org/0009-0009-5301-3212
Mariana Tavares RochaGraduate Program in Collective Health, University of Fortaleza (UNIFOR), Fortaleza, Ceará, Brazil.
Melania Maria Ramos de AmorimProfessor Fernando Figueira Institute of Integral Medicine (IMIP), Recife, Brazil.ORCID https://orcid.org/0000-0003-1047-2514

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Autistic women experience increased obstetric and perinatal risks, partly driven by communication barriers within maternity care. Evidence on how these barriers are experienced in low- and middle-income countries remains scarce. This study aimed to analyze communication barriers in perinatal care based on narratives of autistic women who experienced pregnancy, childbirth, and postpartum care in Brazil. A qualitative study was conducted using the Hermeneutic-Dialectic Circle (HDC) approach. Thirty-four autistic women (22 with support level 1 and 12 with support level 2, including three non-speaking participants with complex communication needs) were recruited through convenience sampling, supplemented by active recruitment through participant referral, and participated in semi-structured interviews conducted in multiple accessible formats (video call, real-time messaging, in-person, and augmentative and alternative communication). Data were analyzed using constant comparative methods within the hermeneutic-dialectic framework, guided by the social model of disability and the neurodiversity paradigm. Three central categories were constructed: (1) communicational demands of autistic women and their non-recognition, including alexithymia, sensory hypersensitivity, and need for predictability; (2) institutional and interpersonal communication failures, encompassing symptom invalidation, disrespectful care, and exclusion of non-speaking women; and (3) experiences of respectful and effective communication, demonstrating that adapted strategies promote safety and autonomy. Participants' narratives indicate that communication barriers in perinatal care for autistic women operate systemically rather than individually. Training healthcare professionals and implementing accessible communication strategies are essential to promote respectful, safe, and inclusive maternity care.

Indexed as

Autistic DisorderCommunication BarriersPerinatal CareAdultBrazilFemaleHermeneuticsHumansPregnancyQualitative ResearchYoung Adult

Identifiers

PMID42748175
PMCPMC13581197

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.