ArticleClinical and public health guidelines2026
Putting People at the Centre of Guidelines.
Article in Clinical and public health guidelines, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
0 citing papers in PubMed.
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Corrections and comments
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Patient and Public Involvement (PPI) is central: SIGN guidelines are shaped by people with lived experience, improving quality and relevance.The article uses the SIGN Dementia guideline as a case study: Carers and third sector organisations helped ensure person-centred care and influenced the inclusion of topics like anticipatory grief.Inclusive engagement methods: SIGN used virtual meetings, presentations, and peer review to gather feedback from people with dementia and carers throughout development.Challenges addressed: The team managed power dynamics and communication barriers, ensuring all voices were heard and valued.Real impact: Lived experience led to changes in recommendations, such as adding sections on grief and regular care plan reviews.Conclusion: Inclusive PPI results in more practical, trusted, and relevant guidelines for all stakeholders.
Identifiers
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.