ArticleClinical and public health guidelines2026
Mapping Evidence on Care Interventions for People Living With Motor Neurone Disease: A Protocol for a Living Evidence and Gap Map.
Article in Clinical and public health guidelines, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed.
- Guidelines addressing Motor Neurone Disease (MND): a scoping review.Neurodegenerative disease management · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
22 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Objective: To map the available evidence informing the care and management of people living with motor neurone disease (MND), including evidence pertaining to carers, asymptomatic genetic carriers, family, friends and healthcare professionals caring for people with MND. Introduction: MND is a devasting neurodegenerative disease that has no cure and eventually leads to paralysis, progressive speech difficulties and respiratory failure. There are a plethora of interventions to support people living with MND, however, information regarding these interventions is often not organised in a manner that best supports the MND community. An evidence and gap map will provide a visual presentation that highlights the existing evidence that is available to support specific interventions, and indicate where there is no evidence. This will help inform future guideline and research efforts. Inclusion Criteria: Studies if they describe care interventions for people living with MND, carers, asymptomatic genetic carriers, family, friends and healthcare professionals caring for people with MND. Peer-reviewed randomised controlled trials, and nonrandomised studies of interventions, systematic reviews and qualitative studies describing the experience of an intervention will be included. Methods: An evidence and gap map will be conducted according to Campbell guidance and JBI guidance for scoping reviews. A comprehensive search of academic databases and clinical trial registries will be performed to identify eligible studies. An evidence inclusion framework has been developed with members of the MND community. Data screening and extraction will be independently performed by two reviewers. The evidence and gap map will be presented using EPPI Reviewer. Review Registration: This protocol has been uploaded to the Australian Motor Neurone Disease (MND) Guideline Open Science Framework page (https://osf.io/c2ezm/).
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Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.