Evidence map›Paper›PMID 42728820›Full record

ArticleJournal of aging & social policy2026

Embracing the DIGNITY of Resident Relationships: A Case Study of the Decision-Making in Aging and Dementia for Autonomy (DIGNITY) Protocol.

Liza Behrens, Karolus Wangi, Caroline Madrigal, Mary Lou Ciolfi, Joanne Roman Jones, Susan Ryan, Nicole Osevala, Betsy Kemeny, Allison Myers, Nicole Sarver

Abstract read
In one paragraph

Article in Journal of aging & social policy, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Liza BehrensRoss and Carol Nese College of Nursing, Pennsylvania State University, University Park, Pennsylvania, USA.ORCID 0000-0002-6143-2654
Karolus WangiRoss and Carol Nese College of Nursing, Pennsylvania State University, University Park, Pennsylvania, USA.
Caroline MadrigalGeriatric & Extended Care, VA Boston Healthcare System, West Roxbury, Massachusetts, USA.
Mary Lou CiolfiAssistant Director for Policy & Education, Center on Aging, University of Maine Center on Aging, Bangor, Maine, USA.
Joanne Roman JonesAssistant Professor, Department of Nursing, Manning College of Nursing and Health Sciences, University of Massachusetts Boston, Boston, Massachusetts, USA.
Susan RyanChief Executive Officer, AgingIN, Linthicum Heights, Maryland, USA.
Nicole OsevalaChief, Division of Geriatric Medicine Harry Albertman Chair in Geriatric Medicine Associate Professor of Medicine, College of Medicine, Pennsylvania State University, Hershey, Pennsylvania, USA.
Betsy KemenyProfessor and Director of the Recreational Therapy Program, Psychology, Social Work, Recreational Therapy Department, Slippery Rock University, Slippery Rock, Pennsylvania, USA.
Allison MyersAllison Myers is Nursing Home Administrator and Nicole Sarver is Chief Executive Officer, Valley View Retirement Community, Belleville, Pennsylvania, USA.
Nicole SarverAllison Myers is Nursing Home Administrator and Nicole Sarver is Chief Executive Officer, Valley View Retirement Community, Belleville, Pennsylvania, USA.

Funding

Penn State Clinical and Translational Science InstituteUL1TR002014 · NCATS · PENNSYLVANIA STATE UNIV HERSHEY MED CTR · PI KRASCHNEWSKI, JENNIFER L. · 2016 to 2025
$33.7M
Penn State Institutional Career Development CoreKL2TR002015 · NCATS · PENNSYLVANIA STATE UNIV HERSHEY MED CTR · PI VAN SCOY, LAUREN JODI · 2016 to 2025
$7.8M
NCATS NIH HHS KL2 TR002015NCATS NIH HHS UL1 TR002014
6 · The paper itself

Abstract

Public policies governing U.S. nursing homes emphasize resident rights, autonomy, and person-centered care, yet translating these principles into everyday practice remains challenging - particularly for residents living with dementia whose preferences involve perceived risk. Regulatory requirements, liability concerns, and inconsistent interpretations of decision-making capacity often constrain staff ability to honor resident choice. This case study examines the application of the Decision-making in Aging and Dementia for Autonomy (DIGNITY) protocol, a structured, evidence-based framework designed to support shared decision-making within regulated long-term care environments. Using a resident-to-resident relationship preference as an illustrative case, the study demonstrates how the DIGNITY protocol guides interdisciplinary decision-making through systematic preference assessment, decision-specific capacity evaluation, risk-benefit analysis, documentation, family engagement, and collaboration with organizational leadership and regulators. The case highlights policy-relevant challenges, including the inappropriate reliance on cognitive screening tools such as the Brief Interview for Mental Status (BIMS) as proxies for decision-making capacity. Findings underscore the importance of clear organizational policies, staff training, and leadership engagement to align person-centered care with regulatory expectations. This case study illustrates how structured decision-making protocols can operationalize resident rights, support autonomy, and mitigate risk, offering a practical model for policy implementation in nursing home dementia care.

Indexed as

Decision-making capacitydementianursing homesperson-centered careresident autonomyrisk managementsafetyshared decision-making

Identifiers

PMID42728820
PMCPMC13622978

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.