Evidence map›Paper›PMID 42722882›Full record

ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2026

IDECIDE breast surgery patient decision aid: Development and testing of a quality of life-integrated decision support tool.

Monica Adams, Jakob A Durden, Sarah E Leslie, Sudheer R Vemuru, Madeline G Higgins, Daniel D Matlock, Maria Baimas-George, Rebecca Daly, Clara Lee, Kathryn Colborn and 5 more

Abstract read
PubMed Publisher
In one paragraph

Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Monica AdamsDepartment of Psychological, Health, and Learning Sciences, College of Education, University of Houston, Houston, TX, USA. mnadams@cougarnet.uh.edu.ORCID http://orcid.org/0000-0003-4778-5653
Jakob A DurdenDepartment of Surgery, University of Colorado Anschutz Medical Campus, Aurora, CO, USA.
Sarah E LeslieAdult and Child Center for Outcomes Research and Delivery Science (ACCORDS), University of Colorado Anschutz Medical Campus, Aurora, CO, USA.
Sudheer R VemuruDepartment of Surgery, University of Colorado Anschutz Medical Campus, Aurora, CO, USA.
Madeline G HigginsDepartment of Surgery, University of Colorado Anschutz Medical Campus, Aurora, CO, USA.
Daniel D MatlockDepartment of Geriatrics, University of Colorado Anschutz Medical Campus, Aurora, CO, USA.
Maria Baimas-GeorgeDepartment of Transplant Surgery, University of Colorado Anschutz Medical Campus, Aurora, CO, USA.
Rebecca DalyDepartment of Surgery, University of Colorado Anschutz Medical Campus, Aurora, CO, USA.
Clara LeeDepartment of Surgery, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Kathryn ColbornDepartment of Medicine, University of Colorado Anschutz Medical Campus, Aurora, CO, USA.
Christine M FisherDepartment of Radiation Oncology, University of Colorado Anschutz Medical Campus, Aurora, CO, USA.
Nicole T ChristianDepartment of Surgery, University of Colorado Anschutz Medical Campus, Aurora, CO, USA.
Christodoulos KaoutzanisDivision of Plastic & Reconstructive Surgery, Department of Surgery, University of Colorado Anschutz Medical Campus, Aurora, CO, USA.
Katie EganDivision of Plastic & Reconstructive Surgery, Department of Surgery, University of Colorado Anschutz Medical Campus, Aurora, CO, USA.
Sarah E TevisDepartment of Surgery, University of Colorado Anschutz Medical Campus, Aurora, CO, USA.

Funding

Association for Academic Surgery Joe J. Roslyn Faculty Research AwardNCI NIH HHS K12 Paul Calabresi Career Development AwardUniversity of Colorado Department of Surgery Academic Enrichment Funds
6 · The paper itself

Abstract

purposeSurgery is the primary treatment for early-stage breast cancer, with breast-conserving surgery and mastectomy offering similar survival outcomes. Shared decision-making (SDM) and patient decision aids (PDAs) can help patients weigh options, but many PDAs lack long-term quality of life (QoL) data. The IDECIDE Breast Surgery PDA addresses this gap by embedding real-world, institution-specific patient-reported QoL data directly into the PDA, allowing patients to consider survivorship outcomes while actively deliberating between surgical options rather than evaluating QoL only after a decision has been made.

methodsDeveloped using the Ottawa Decision Support Framework and International Patient Decision Aids Standards (IPDAS), the PDA underwent iterative testing for understandability, actionability, and acceptability. Nine patients and six clinicians assessed the PDA via surveys and semi-structured interviews. Thematic rapid coding analysis was applied to interview transcripts.

resultsPatients rated the PDA's understandability at 98.7% and actionability at 92.0%, with 100% finding the length and amount of information appropriate. Clinicians rated understandability at 100% and actionability at 95.2%. Both groups found the PDA balanced in presenting treatment options, with clinicians scoring 42.5/46.0 on IPDAS criteria. Patient interviews highlighted clarity, visual aids, and inclusion of QoL data, with suggestions for additional content and improved formatting. Clinicians recommended addressing contralateral breast surgery and endocrine therapy concerns.

conclusionsThe IDECIDE PDA effectively integrates QoL data and supports SDM, with high ratings from both patients and clinicians. Future work will implement suggested revisions and pilot the PDA with newly diagnosed breast cancer patients.

Indexed as

Breast NeoplasmsDecision Making, SharedDecision Support TechniquesMastectomyPatient ParticipationQuality of LifeAdultAgedFemaleHumansMiddle AgedSurveys and QuestionnairesBreast cancer surgeryPatient-centered carePatient decision aid (PDA)Quality of life (QoL)Shared decision-making (SDM)

Identifiers

PMID42722882

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.