Evidence map›Paper›PMID 42721126›Full record

ArticlePLOS mental health2026

Understanding disparities in autism diagnosis and care: A socioecological perspective.

Abishek Bala, Christa Deban, Henry Hoskinson, Manal Mukhtar, Aditya Shah, Aymen Syeda, Aateqa Hashmi

Abstract read
In one paragraph

Article in PLOS mental health, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Abishek BalaDepartment of Child and Adolescent Psychiatry, Children's Hospital of Eastern Ontario, University of Ottawa, Ottawa, Ontario, Canada.ORCID https://orcid.org/0000-0001-7967-1859
Christa DebanCovenant HealthCare College of Medicine at Central Michigan University, Saginaw, Michigan, United States of America.ORCID https://orcid.org/0000-0001-7853-7041
Henry HoskinsonDepartment of Psychiatry, Covenant HealthCare College of Medicine at Central Michigan University, Saginaw, Michigan, United States of America.
Manal MukhtarDepartment of Psychiatry, Covenant HealthCare College of Medicine at Central Michigan University, Saginaw, Michigan, United States of America.
Aditya ShahCovenant HealthCare College of Medicine at Central Michigan University, Saginaw, Michigan, United States of America.
Aymen SyedaCovenant HealthCare College of Medicine at Central Michigan University, Saginaw, Michigan, United States of America.ORCID https://orcid.org/0009-0009-7039-5881
Aateqa HashmiDepartment of Psychiatry, Covenant HealthCare College of Medicine at Central Michigan University, Saginaw, Michigan, United States of America.ORCID https://orcid.org/0009-0005-8408-4057

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Disparities in autism spectrum disorder (ASD) identification and care are well documented across racial and ethnic, socioeconomic, and geographic lines, yet their underlying mechanisms are incompletely understood. This paper applies the Socioecological Model (SEM) as an organizing framework to examine how individual, interpersonal, community, organizational, and policy-level factors interact to produce inequitable trajectories in ASD diagnosis and service access. At the individual level, heterogeneity in symptom presentation, co-occurring psychiatric conditions, and diagnostic tools normed on Western, predominantly White samples contribute to variation in recognition. Girls from minoritized racial and ethnic backgrounds face compounded delays related to both sex-related camouflaging and cultural assessment bias. At the interpersonal level, provider-family communication, trust, and stigma shape whether developmental concerns are raised, referrals are completed, and services are engaged. Systematic reviews document that caregivers from minoritized groups report lower perceived quality of care and greater barriers to diagnostic follow-through. At the community level, neighborhood disadvantage, school resource variability, and culturally embedded interpretations of child development influence help-seeking and access to early intervention. At the organizational level, inconsistent screening adherence, limited diagnostic capacity, lengthy waitlists, and inequitable reimbursement structures create structural bottlenecks that disproportionately affect publicly insured and minoritized families. At the policy level, variation in state insurance mandates, Medicaid reimbursement rates, workforce distribution, and telehealth regulatory frameworks establish the conditions under which all lower-level factors operate. Recent surveillance data indicate that ASD prevalence among Hispanic, Black, and Asian or Pacific Islander children now exceeds that of White children in some cohorts, reflecting expanded screening and policy reform. However, convergence in prevalence does not constitute equity. Disparities in age at diagnosis, co-occurring intellectual disability, service intensity, and long-term outcomes persist. This paper also addresses training and workforce implications, arguing that sustainable equity requires structural competency education, workforce diversification, and community-partnered approaches integrated across career stages. The SEM framework highlights that disparities in ASD care are not attributable to individual clinical factors alone but emerge from the interaction of relational, institutional, and structural forces. Coordinated, multilevel strategies that extend beyond improved symptom recognition to systemic transformation are necessary to ensure timely, culturally responsive, and universally accessible care for all children.

Identifiers

PMID42721126
PMCPMC13561342

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.