ArticleFrontiers in medicine2026
Development and pilot study of family-centered neonatal palliative care.
Article in Frontiers in medicine, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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6 authors.
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Abstract
Background: The high global neonatal mortality rate, the variety of causes of death, and the poor quality of neonatal survival at the end of life make the implementation of neonatal palliative care (NPC) urgent. Developed countries have developed guidance models and systems for NPC. In developing countries, NPC is still in its infancy, with insufficient practice experience. Therefore, there is an urgent need to develop practice-oriented NPC models. Methods: Based on the family-centered care (FCC) theory, this study adopted a combination of literature research, qualitative research and the Delphi method to develop a family-centered NPC (FCC-NPC) model. Using a before-and-after control method, 10 cases of end-of-life children in the neonatal department of a children's specialty hospital in Hunan Province were selected as study subjects to observe the feasibility of model implementation and family satisfaction. Results: We conducted two rounds of expert correspondence. The recovery rates of the first and second questionnaires were 100%. The average authoritative coefficients were 0.858. The Kendall W values ranged from 0.302-0.503 ( Conclusion: The FCC-NPC developed in this study has good science and practicality, and may provide a reference for NPC clinical practice.
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