ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2026
Adapting a mental health program for people with multiple myeloma and smouldering myeloma: a consumer-informed feasibility study.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
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Who cites it
1 citing paper in PubMed.
- Missed opportunities to promote flourishing in cancer care: a brief examination of multiple myeloma.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
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Authors and funding
13 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Consumer involvement in mental health interventions is recognised as essential to producing research that is relevant, acceptable, and ultimately more effective. Here, we report on a mixed-method pilot study to evaluate the suitability of an existing mental health program for people living with incurable blood cancer, multiple myeloma, and precursor form, smouldering multiple myeloma. The study sought to identify consumer-informed recommendations to guide the future adaptation of a bespoke mental health program for this population who face significant psychosocial distress due to disease and treatment-related symptoms and burden. Twenty consumers (38-72 years) with multiple myeloma (n = 16) and smouldering multiple myeloma (n = 4), as well as Myeloma Australia nurses (n = 4), pilot-tested an existing online mental health program-the Be Well Plan. After program delivery, feedback surveys and semi-structured focus groups were used to inform future program adaptation. Pre-post assessment of empowerment, mental wellbeing, anxiety and depression were analysed to identify preliminary signals of change and inform future trial planning. Satisfaction with and feasibility of the program was encouraging. Qualitative thematic analysis of post-program feedback revealed several themes including the importance of connecting with other consumers, the need for myeloma-specific adaptation, and delivery, facilitation, and clinical implementation considerations. Univariate ANOVAs indicated significant improvements with large effects in both mental wellbeing (η
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