ArticleJMIR cancer2026
"Like a Clinical Nurse Consultant in Your Pocket"-Parents' and Health Care Providers' Perceptions of a Co-Designed Smartphone App Following Treatment for Pediatric Cancer: Mixed Methods Evaluation Study.
Article in JMIR cancer, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background: Pediatric cancer presents many challenges for young patients and families that extend beyond active treatment. Families report significant unmet information and supportive care needs at the end of treatment (EOT). Digital health solutions, such as patient apps, offer a potential solution to address current gaps in care. Objective: This study aimed to develop and test a smartphone app called LotusLab, designed to improve access to survivorship information for parents of childhood cancer survivors aged 0 to 18 years, and for young people (aged 12 years and older) at the EOT. In addition, this study aimed to examine parents' and health care providers' (HCPs) perceptions of LotusLab during β-testing to inform further app development and refinement. Methods: Participants were invited to explore the content and key functionality of LotusLab, including an embedded patient-reported outcome measure (PROM). Evaluation of the usability, acceptability, usefulness, and feasibility of the app was conducted through quantitative surveys and qualitative semistructured interviews. Results: Participants comprised 8 parents whose children had completed cancer treatment, and 9 HCPs. All participants (100%) "agreed" or "strongly agreed" that the app was acceptable; however, HCPs reported more neutral acceptability responses compared with parents. Parents scored app usability more highly, with a mean System Usability Scale (SUS) score of 86.88 (SD 8.74), than HCPs' mean SUS score of 66.39 (SD 10.16). A common perceived benefit of LotusLab was the provision of trusted information and psychosocial resources. Suggestions for improvement included adding a search function, enhancing the layout, and adding additional topics. All parents completed the app-embedded PROM. Both cohorts noted the value of the PROM in enhancing EOT consultations, while highlighting considerations for the effective integration of and response to PROM data. Conclusions: Initial data indicate that LotusLab is easy for parents to use and provides value through the provision of EOT information and the opportunity to enhance the use of the PROM. Consistent with the co-design methodology, these findings are guiding the ongoing development and implementation of LotusLab.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.