Evidence map›Paper›PMID 42698198›Full record

ArticleNursing open2026

Understanding Patients' Experiences of Digital Ethics in a Digitalised Healthcare System.

Aysun Bayram, Betül Bal, Alvisa Palese

Abstract read
In one paragraph

Article in Nursing open, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Aysun BayramDepartment of Nursing Fundamentals, Faculty of Health Sciences, Karadeniz Technical University, Trabzon, Turkey.ORCID https://orcid.org/0000-0003-2038-6265
Betül BalDepartment of Nursing, Akdağmadeni School of Health, Yozgat Bozok University, Yozgat, Turkey.ORCID https://orcid.org/0000-0002-8796-0324
Alvisa PaleseDepartment of Medical Science, University of Udine, Udine, Italy.ORCID https://orcid.org/0000-0002-3508-844X

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveTo explore patients' experiences and perceptions of using digital health technologies, and their ethical evaluations regarding the processing of personal health data in healthcare digital environments.

methodsAn interpretive phenomenological qualitative study reported in accordance with the Consolidated Criteria for Reporting Qualitative Research guidelines. Thirteen outpatients admitted to units at a university hospital were involved through purposive sampling. Face-to-face interviews were conducted using a semi-structured guide. Data were analysed using a thematic analysis approach.

resultsPatients' experiences with digital technologies are multidimensional, with convenience and limitations coexisting. Privacy protection, autonomy over health data, trust in the system and healthcare professionals, data security, and procedural fairness are experienced as compromised. These ethical breaches were associated with patients' perceptions of negative emotional responses and power loss. Participants described themselves as passive users of the systems, particularly due to a lack of transparency in data access and limited opportunities to correct, delete, or restrict the sharing of their data. Strengthening informed consent processes and digital literacy initiatives that enable patients to make informed use of digital systems are fundamental components of ethical protection.

conclusionsWhile digital health technologies offer functional conveniences for patients, they present significant ethical vulnerabilities. Privacy violations, weakening of data autonomy, and erosion of trust fundamentally affect data security and the relationship patients have with digital health systems and the wider healthcare system. The rejection of being passive victims in these processes clearly reveals the need for patient-centred digital health governance that prioritises transparent, traceable, and accountable systems, along with data controllability. IMPLICATIONS FOR NURSING PRACTICE: This study shows that nurses are essential in promoting patients' ethical and informed use of digital health systems. Nurses should foster patients' digital health literacy, inform them of their rights related to personal health data and consent, identify and report ethical concerns in digital health systems, and encourage patients' active involvement in decisions about their health data. These practices help empower patient autonomy, build trust in digital health systems, and support the delivery of ethical digital health services. PATIENT OR PUBLIC CONTRIBUTION: Patients who utilised digital health systems participated in this study exclusively as research subjects. To enhance the credibility of the findings, member checking was conducted with two participants, and their feedback on the emerging themes was obtained. Neither patients nor members of the public were involved in the study's design, conduct, data analysis, interpretation of results, or dissemination planning.

Indexed as

Digital HealthAdultAgedConfidentialityDelivery of Health CareFemaleHumansInterviews as TopicMaleMiddle AgedQualitative Researchdigital ethicsdigital healthethicshealth technologypatientqualitative study

Identifiers

PMID42698198
PMCPMC13545412

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.