Evidence map›Paper›PMID 42693132›Full record

ArticleNPJ genomic medicine2026

Environmentally responsible human genomic data governance: points for consideration.

Narcyz Ghinea, Gabrielle Samuel, Wendy Xin, Emma Bonser, Robert Cook-Deegan, Monica Ferrie, Christopher Gyngell, Margaret Otlowski, Alan Petersen, Bridget Pratt and 2 more

Abstract readLetter
PubMed Full text at PMC Publisher
In one paragraph

Article in NPJ genomic medicine, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Narcyz GhineaSydney Health Ethics Faculty of Medicine and Health, Sydney School of Public Health, University of Sydney, Sydney, NSW, Australia.ORCID http://orcid.org/0000-0002-1457-7252
Gabrielle SamuelDepartment of Global Health and Social Medicine, King's College London, London, UK.
Wendy XinSydney Health Ethics Faculty of Medicine and Health, Sydney School of Public Health, University of Sydney, Sydney, NSW, Australia.
Emma BonserGenetic Alliance Australia, Darlinghurst, NSW, Australia.
Robert Cook-DeeganArizona State University, Washington, DC, USA.ORCID http://orcid.org/0000-0002-8251-4237
Monica FerrieGenetic Support Network Victoria, Parkville, VIC, Australia.
Christopher GyngellDepartment of Paediatrics, The University of Melbourne, Melbourne, VIC, Australia.ORCID http://orcid.org/0000-0002-1340-3947
Margaret OtlowskiFaculty of Law, Centre for Law and Genetics, University of Tasmania, Hobart, TAS, Australia.
Alan PetersenSchool of Social Sciences, Monash University, Clayton, VIC, Australia.
Bridget PrattQueensland Bioethics Centre, Australian Catholic University, Brisbane, QLD, Australia.
Susie Roczo-FarkasSydney Health Ethics Faculty of Medicine and Health, Sydney School of Public Health, University of Sydney, Sydney, NSW, Australia.
Ainsley J NewsonSydney Health Ethics Faculty of Medicine and Health, Sydney School of Public Health, University of Sydney, Sydney, NSW, Australia. ainsley.newson@sydney.edu.au.ORCID http://orcid.org/0000-0002-3460-772X

Funding

Medical Research Future Fund MRF2015531Wellcome TrustWellcome Trust 222180/Z/20/Z
6 · The paper itself

Abstract

PubMed holds no abstract for this paper.

Identifiers

PMID42693132
PMCPMC13542193

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.