ArticleResearch square2026
Measurement Properties of Caregiver Impact Measures in Pediatric Chronic Gastrointestinal Disorders: A Systematic Review.
Article in Research square, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
Purpose: Caregivers of children with chronic gastrointestinal disorders experience physical, psychological, social, and financial impact. This systematic review aimed to evaluate the available evidence on the measurement properties of caregiver impact PROMs in chronic gastrointestinal disorders and to identify the best available measures. Methods: MEDLINE, Embase, CINAHL, PsycINFO, and Scopus were comprehensively searched from their inception to April 30, 2026. All English language studies examining the measurement properties of caregiver impact measures in children with chronic gastrointestinal diseases were included, irrespective of measure language. All COSMIN measurement properties were examined. Risk of bias was assessed to derive recommendations for suitable PROMs to measure caregiver impact. Results: A total of 24 studies of 26 tools were included. Study quality was moderate or low. Measures with sufficient evidence of validity included: Arabic Celiac Disease Parent Caregiver Quality of Life (CDPCA-QoL); Celiac Disease Life Inventory of Family Experiences (CDLIFE); CDPCA-QoL; Cincinnati Fecal Incontinence Scale (CINCY-FIS); Croatian Pediatric Quality of Life Inventory Conclusion: Despite the number of caregiver impact PROMs identified, high-level evidence supporting their measurement properties in chronic gastrointestinal disorders remains limited. Ongoing measurement evaluation and rigorous cultural validation are essential to strengthen the evidence base and support their broader clinical application.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.