Evidence map›Paper›PMID 42681699›Full record

ReviewResearch involvement and engagement2026

Questions for more insightful and useful analyses of barriers and facilitators to public involvement and engagement in health research: a critical narrative review.

Lauge Neimann Skov

Abstract readReview
In one paragraph

Review in Research involvement and engagement, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

1 author.

Lauge Neimann SkovDepartment of Public Health, University of Copenhagen, Øster Farimagsgade 5, Copenhagen, 1353, Denmark. lauge.neimann.skov@regionh.dk.ORCID http://orcid.org/0000-0001-9584-2443

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPublic involvement and engagement in health research is widely promoted yet remains challenging and unevenly practised across health research contexts. To explain this, it has become popular to analyse so-called barriers to and facilitators of involvement. However, critics argue that such analyses are simplistic and generate little knowledge to guide action. This review critically appraises the typical form of barrier analysis concerned with public involvement in health research and proposes eight lines of inquiry that may make future analyses more insightful and useful.

methodsThis is a critical narrative review informed by a systematic search of four health research databases in June 2026. Records were eligible if they stated a research objective concerning barriers to public involvement in health research and reported their findings in a topical manner, meaning that they mainly named and summarised findings and organised them in themes. These topical barrier analyses were critically appraised in relation to their capacity to improve understanding and inform involvement practice, and their findings were contrasted with broader debates about public involvement.

findingsEighty topical barrier analyses concerning public involvement in health research were identified and reviewed. The review argues that the analyses pay little attention to what a barrier is or means, what it obstructs, when and where it arises, and whom it affects. Their recommendations are abstract, basic or largely aspirational; they link irregularly to the barriers identified; and they are usually directed towards researchers while doing little to help members of the public. The review argues that these shortcomings stem from a focus on two repetitive questions: what are the barriers, and how might they be overcome? To move beyond the analytical shortcomings, the review proposes eight new lines of inquiry: five aimed at making analyses more insightful and three at making them more useful.

conclusionUnlike critics who call for barrier analyses to be abandoned, or those who call for methodological refinements, this review argues that the future of barrier analyses depends on a willingness to ask new questions that may generate knowledge that is more insightful and useful than what is already known.

Indexed as

BarriersChallengesFacilitatorsHealth researchMethodologyMethodsParticipatory researchPatient and public involvementResearch questions.

Identifiers

PMID42681699
PMCPMC13536805

What OpenQuestion holds

Textmetadata
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.